L’etica in sanità: empowerment, partecipazione e informazione dei cittadini. Quali sviluppi?
Journal title SOCIOLOGIA E RICERCA SOCIALE
Author/s Giuseppina Cersosimo
Publishing Year 2009 Issue 2009/89 Language Italian
Pages 23 P. 79-101 File size 362 KB
DOI 10.3280/SR2009-089004
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Ethics in Health Care: Citizens’ Empowerment, Participation and Information. Roads to development? - The article underlines how techniques, rules, rights and ethics constitute, or could, a set of requirements and conditions needed to give shape to a legitimate clinical experimentation on human beings and, in particular, on subjects considered vulnerable. The article focuses on the relation between doctors, researchers, bio-ethic experts, lawyers, pharmaceutical promoters and citizens. It presents the heterogeneous knowledge and interests in ethical issues regarding health care, with overlapping of equity and equality in terms of access to clinical experimentation, as well as citizens’ difficulty in comprehending clinical experimentation and its effects. Finally, the study conducted with the focus group technique leads to a model that allows citizens and non-specialists to talk about participation and responsibility regarding clinical experimentation.
Giuseppina Cersosimo, L’etica in sanità: empowerment, partecipazione e informazione dei cittadini. Quali sviluppi? in "SOCIOLOGIA E RICERCA SOCIALE " 89/2009, pp 79-101, DOI: 10.3280/SR2009-089004