Persone LGBTQ+ con malattia cronica in Italia: tra precarietà, cura e (in)visibilità

Journal title SALUTE E SOCIETÀ
Author/s Mara Pieri
Publishing Year 2022 Issue 2022/2 Language Italian
Pages 14 P. 84-97 File size 81 KB
DOI 10.3280/SES2022-002007
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The research "Chroniqueers" questions the multiple intersections between experiences of chronic illness and LGBTQ+ identification. It investigates the narratives of 24 young adults aged between 24 and 39 in Italy and Portugal. Chronic illness is seldom explored in its rela-tions with LGBTQ+ experiences; at the same time, sexual orientations and gender identities outside the cis-heteronormative norm are rarely present in studies on chronic illness. In the context of job insecurity, weakness of the legislative framework for LGBTQ + people and centrality of a family-oriented culture, the experiences of LGBTQ + people with chronic ill-ness constitute a litmus tests of multiple forms of social and economic vulnerability. The article analyzes some of those emerged in the Italian sample, with specific attention to significant in-terweaving aspects between visibility, care and precariousness.

Keywords: chronic illness; LGBTQ+; precariousness; care; visibility; narratives.

  1. Ahmed S. (2006). Queer Phenomenology: Orientations, Objects, Others. Durham: Duke University Press.
  2. Armstrong D. (2014). Chronic illness: a revisionist account. Sociology of Health & Illness, 36: 15-27. DOI: 10.1111/1467-9566.1203
  3. Austin E.L. (2013). Sexual orientation disclosure to health care providers among urban and non-urban southern lesbians. Women & Health, 53: 41-55. DOI: 10.1080/03630242.2012.74349
  4. Bertone C. (2013). Citizenship across generations: struggles around heteronormativities. Citizenship Studies, 17: 985-999. DOI: 10.1080/13621025.2013.85114
  5. Bertone C. (2020). Disrupting heterosexuality in intergenerational relations. In: Davy Z., Santos A.C., Bertone C., Thoreson R. e Wieringa S.E., a cura di, The SAGE Handbook of Global Sexualities. Vol. 1. London: SAGE Publications Ltd.
  6. Brim M. and Ghaziani A., a cura di (2016). WSQ: Queer Methods. New York: Feminist Press at the City University of New York.
  7. Browne K. and Nash C.J. (2010). Queer methods and methodologies: Intersecting queer theories and social science research. Burlington: Ashgate.
  8. Bury M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4: 167-182.
  9. Bury M. (1991). The sociology of chronic illness: A review of research and prospects. Sociology of Health & Illness, 13: 451-468.
  10. Bury M. (1997). Health and Illness in a Changing Society. London: Routledge.
  11. Franchi M. and Selmi G. (2020). Same-sex parents negotiating the law in Italy: between claims of recognition and practices of exclusion. In: Digoix M., a cura di, Same-sex families and legal recognition in Europe. Cham: Springer.
  12. Genke J. (2004). Resistance and resilience: the untold story of gay men aging with chronic illness. Journal of Gay & Lesbian Social Services, 17: 81-95.
  13. Gusmano B. (2018). Subvertir la heteronorma a través de la amistad. Convivencia y redes de cuidado en la precariedad. Revista TransVersos, 14: 90-110.
  14. Halberstam J. (2011). The queer art of failure. Durham: Duke University Press.
  15. Ward J., Winstanley D. (2005). Coming out at work: Performativity and the recognition and renegotiation of identity. The Sociological Review, 53: 447-475.
  16. Hodges I., Rodohan E. (2004). Living with homophobia: Exploring accounts of communication and disclosure from London gay men diagnosed with HIV. Lesbian & Gay Psychology Review, 5: 109-117.
  17. ILGA-Europe. (2021). Rainbow Europe. -- testo disponisbile al sito https://www.rainbow-europe.org/ (25/05/2021).
  18. Kafer A. (2013). Feminist, queer, crip. Bloomington: Indiana University Press.
  19. La Mendola S. (2009). Centrato e aperto: Dare vita a interviste dialogiche. Torino: UTET Università.
  20. Larsson A.T., Grassman E.J. (2012). Bodily changes among people living with physical impairments and chronic illnesses: biographical disruption or normal illness?. Sociology of Health & Illness, 34: 1156-1169.
  21. Lingiardi V., Nardelli N. (2008). Spazio zero. Minority stress e identità omosessuali. In: Antosa S., a cura di, Omosapiens 2. Spazi e identità queer. Roma: Carocci Editore.
  22. Lipton B. (2004). Gay men living with non-HIV chronic illnesses. Journal of Gay & Lesbian Social Services, 17: 1-23.
  23. McRuer R. (2006). Crip theory: Cultural signs of queerness and disability. New York: New York University Press.
  24. Meyer I.H. (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129: 674-697. DOI: 10.1037/0033-2909.129.5.67
  25. Murgia A. (2010). Dalla precarietà lavorativa alla precarietà sociale. Biografie in transito tra lavoro e non lavoro. Bologna: I libri di Emil.
  26. Park S.M. (2013). Mothering Queerly, Queering Motherhood. New York: Suny Press.
  27. Pieri M. (2020). Multiple estrangements in the twilight zone: Chronic illness and queerness in Southern Europe. In: Davy Z., Santos A.C., Bertone C., Thoreson R. e Wieringa S., a cura di, The Sage handbook of global sexualities. London: SAGE Publications.
  28. Poggio B. (2004). Mi racconti una storia? Il metodo narrativo nelle scienze sociali. Roma: Carocci Editore.
  29. Priola V., Lasio D., Serri F., De Simone S. (2018). The organisation of sexuality and the sexuality of organisation: A genealogical analysis of sexual ‘inclusive exclusion’ at work. Organization, 25: 732-754. DOI: 10.1177/135050841879014
  30. Rinaldi C. and Bacio M. (2019). The queer researcher: challenging homonormativity in research and educational settings. In: Magaraggia S., Mauerer G. e Schmidbaur M., a cura di, Feminist perspectives on teaching masculinities. Learning Beyond Stereotypes. London: Routledge.
  31. Roseneil S., Budgeon S. (2004). Cultures of intimacy and care beyond ‘the family’: Personal life and social change in the early 21st century. Current Sociology, 52: 135-159. DOI: 10.1177/001139210404179
  32. Santos A.C. (2013). Social movements and sexual citizenship in Southern Europe. Basingstoke: Palgrave Macmillan.
  33. Saraceno C. (2004). The Italian family from the 1960s to the present. Modern Italy, 9: 47-57. DOI: 10.1080/1353294041000167749
  34. St.Pierre M. (2012). Under what conditions do lesbians disclose their sexual orientation to primary healthcare providers? A review of the literature. Journal of Lesbian Studies, 16: 199-219. DOI: 10.1080/10894160.2011.60483
  35. Vaittinen T. (2015). The power of the vulnerable body. International Feminist Journal of Politics, 17: 100-118. DOI: 10.1080/14616742.2013.876301
  36. van Dam M.A.A., Koh A.S., Dibble S.L. (2001). Lesbian disclosure to health care providers and delay of care. Journal of the Gay and Lesbian Medical Association, 5: 11-19. DOI: 10.1023/A:100953401582
  37. Weeks J. (1996). Sexual Cultures: Communities, Values and Intimacy. Basingstoke: Palgrave Macmillan.
  38. Wendell S. (2001). Unhealthy disabled: treating chronic illnesses as disabilities. Hypatia, 16: 17-33.
  39. Weston K. (1991). Families we choose: Lesbians, gays, kinship. New York: Columbia University Press.
  40. Williams S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health & Illness, 22: 40-67. DOI: 10.1111/1467-9566.0019
  41. Zeeman L., Aranda K. and Grant A. (2014). Queering health. Critical challenges to normative health and healthcare. Monmouth: PCCS books.
  42. Cardano M. (2003). Tecniche di ricerca qualitativa. Percorsi di ricerca nelle scienze sociali. Roma: Carocci Editore.
  43. Di Feliciantonio C., Gadelha K.B., DasGupta D. (2017). ‘Queer(y)ing methodologies: Doing fieldwork and becoming queer’ – guest editorial. Gender, Place & Culture, 24: 403-412. DOI: 10.1080/0966369X.2017.131495
  44. Eurostat. (2020). Unemployment rate—Annual data. -- testo disponibile al sito https://ec.europa.eu/eurostat/databrowser/view/tipsun20/default/table?lang=en(25/01/2020).
  45. Ezzy D. (2000). Illness narratives: time, hope and HIV. Social Science & Medicine, 50: 605-617.

Mara Pieri, Persone LGBTQ+ con malattia cronica in Italia: tra precarietà, cura e (in)visibilità in "SALUTE E SOCIETÀ" 2/2022, pp 84-97, DOI: 10.3280/SES2022-002007