The aim of this study was to describe and compare the meaning of quality of life (QOL) for caregivers of patients with Alzheimer’s Disease living in Lazio and Sardinia region and to identify factors worsening and improving caregiver’s QOL in the two contexts. A hermeneutic phenomenological design was used to study 73 informal caregivers. Emerged themes related to the meaning of QOL were: freedom, independence, having time for themselves; serenity, tranquility; general wellbeing and good health; good financial status; unity and cooperation in the family. Themes related to factors worsening QOL were: worries about the future and illness progression; stress; fear about the future: for the care needed and the illness progression; continuous care, not having time for themselves. Factor improving QOL were: patients’ good health; formal and informal help in caregiving; independence from the patient; help and support from family; reward and satisfaction for the delivered care; more free time; more public sensitization on AD. Similarities and differences were found between the two regions and were discussed as well.
Keywords: Qualità di vita, caregiver informali, malattia di Alzheimer, assistenza infermieristica, interviste, ricerca fenomenologica
Carlo Talucci, Ercole Vellone, Giovanni Piras, Marlene Z. Cohen, Rosaria Alvaro, in "SALUTE E SOCIETÀ" 3/2013, pp. 126-140, DOI:10.3280/SES2013-003009