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"In order not to die earlier". Coping strategies in women with multiple sclerosis
Journal Title: PSICOLOGIA DI COMUNITA’ 
Author/s: Gioacchino Lavanco, Carolina Messina, Laura Clorinda Rinaldi 
Year:  2016 Issue: 2 Language: Italian 
Pages:  16 Pg. 79-94 FullText PDF:  253 KB
DOI:  10.3280/PSC2016-002008
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Multiple sclerosis, an inflammatory demyelinating disease with a chronic course, causes strong negative psychological feelings and the unpredictability of symptoms makes it a disabling disease. An research-intervention has been carried out with the aim to analyze the development of the health conditions in women with multiple sclerosis and to determine the role of psychosocial variables as supporting factors. The preliminary analysis of the data highlights the importance of coping strategies in the disease management.
Keywords: Multiple sclerosis, disease management, research-intervention, supporting factors, coping
Jel Code: I12, I31

  1. Amato M.P., Portaccio E., Goretti B., Zipoli V., Hakiki B., Giannini M., Pastò L., Razzolini L. (2010). Cognitive impairment in early stages of multiple sclerosis. Neurological Sciences, 31(S2): S211-214.
  2. Beck A.T., Ward C.H., Mendelson M., Mock J., Erbaugh J. (1961). An inventory for measuring depression. Arch Gen Psychiatry, 4: 561-71.
  3. Bertolotto A., Caricati E. (2013). Che cos’è la sclerosi multipla. In: Bonino S., a cura di, Aspetti psicologici nella sclerosi multipla. Dalla diagnosi alla gestione della malattia. Milano: Springer-Verlag, cap. 1, pp. 3-10.
  4. Borisow N., Döring A., Pfueller C.F., Paul F., Dörr J., Hellwig K. (2012). Expert recommendations to personalization of medical approaches in treatment of multiple sclerosis: an overview of family planning and pregnancy. EPMA Journal, 3(1): 9., DOI: 10.1186/1878-5085-3-
  5. Calandri E., Graziano F., Borghi M., Bonino S. (2016). Depressione e benessere psicologico in persone con sclerosi multipla: il ruolo dell’identità, del senso di coerenza e dell’autoefficacia. Psicologia della Salute, 1: 49-66., DOI: 10.3280/PDS2016-001007
  6. Corry M., While A. (2009). The needs of carers of people with multiple sclerosis: a literature review. Scandinavian Journal of Caring Sciences, 23(3): 569-588.
  7. De Stefano N., Tedeschi G. (2014). Sclerosi multipla. In: Federico A., Caltagirone C., Provinciali L., Tedeschi G., a cura di, Neurologia pratica. Napoli: Edises, cap. 38, pp. 574-582.
  8. Fragoso Y.D., Boggild M., Macias-Islas M.A., Carra A., Schaerer K.D., Aguayo A., de Almeida S.M., Alvarenga M.P., Alvarenga R.M., Alves-Leon S.V., Arruda W.O., Brooks J.B., Comini-Frota E.R., Ferreira M.L., Finkelsztejn A., Finkelsztejn J.M., de Freitas L.D., Gallina A.S., da Gama P.D., Georgetto S., Giacomo M.C., Gomes S., Gonçalves M.V., Grzesiuk A.K., Kaimen-Maciel D.R., Lopes J., Lourenco G.A., Malfetano F.R., Morales N.M., Morales Rde R., Oliveira C.L., Onaha P., Patroclo C., Ribeiro S.B., Ribeiro T.A., Salminen H.J., Santoro P., Seefeld M., Soares P.V., Tarulla A., Vasconcelos C.C. (2013). The effects of long-term exposure to disease-modifying drugs during pregnancy in multiple sclerosis. Clinical Neurology and Neurosurgery, 115(2): 154-159.
  9. Forbes A., While A., Mathes L. (2007). Informal carer activities, carer burden and health status in multiple sclerosis. Clinical Rehabilitation, 21(6): 563-575., DOI: 10.1177/026921550707503
  10. Gambini P. (2007). Psicologia della famiglia. La prospettiva sistemico-relazionale. Milano: Franco Angeli.
  11. Gasperini C. (2015). Relazione tra centro di riferimento e territorio. AboutOpen, 1(1): 72-78.
  12. Gasperini C., Ruggeri S. (2013). Evoluzione della malattia. In: Bonino S., a cura di, Aspetti psicologici nella sclerosi multipla. Dalla diagnosi alla gestione della malattia. Milano: Springer-Verlag, cap. 2, pp. 11-26.
  13. Gay M.C., Vrignaud P., Garitte C., Meunier C. (2010). Predictors of depression in multiple sclerosis patients. Acta Neurologica Scandinavica, 121(3): 161-170.
  14. Goretti B., Portaccio E., Zipoli V., Hakiki B., Siracusa G., Sorbi S., Amato M.P. (2010). Impact of cognitive impairment on coping strategies in multiple sclerosis. Clinical Neurology and Neurosurgery, 112(2): 127-130.
  15. Heward K., Molineux M., Gough B. (2006). A Grounded Theory Analysis of the Occupational Impact of Caring for a Partner who has Multiple Sclerosis. Journal of Occupational Science, 13, 2-3: 188-197., DOI: 10.1080/14427591.2006.972651
  16. Janssens A.C.J.W., Doorn P.A., Boer J.B., Meche F.G.A., Passchier J., Hintzen R.Q. (2003). Impact of recently diagnosed multiple sclerosis on quality of life, anxiety, depression and distress of patients and partners. Acta Neurologica Scandinavica, 108(6): 389-395.
  17. Kendall N.A.S. (1999). Psychosocial approaches to the prevention of chronic pain: the low back paradigm. Best Practice & Research Clinical Rheumatology, 13(3): 545-554.
  18. Kouzoupis A.B., Paparrigopoulos T., Soldatos M., Papadimitriou G.N. (2010). The family of the multiple sclerosis patient: A psychosocial perspective. International Review of Psychiatry, 22(1): 83-89., DOI: 10.3109/0954026100358958
  19. Lavanco G., Novara C. (2012). Elementi di psicologia di comunità. Progettare, attuare e partecipare il cambiamento sociale. Milano: McGraw-Hill.
  20. Litta R. (2010). Aspetti psicologici e sclerosi multipla. Giovani oltre la sclerosi multipla. Genova: SM Italia.
  21. Lublin F.D., Reingold S.C., Cohen J.A., Cutter G.R., Sørensen P.S., Thompson A.J., Wolinsky J.S., Balcer L.J., Banwell B., Barkhof F., Bebo B.J., Calabresi P.A., Clanet M., Comi G., Fox R.J., Freedman M.S., Goodman A.D., Inglese M., Kappos L., Kieseier B.C., Lincoln J.A., Lubetzki C., Miller A.E., Montalban X., O’Connor P.W., Petkau J., Pozzilli C., Rudick R.A., Sormani M.P., Stüve O., Waubant E., Polman C.H. (2014). Defining the clinical course of multiple sclerosis: the 2013 revisions. Neurology, 83, 3: 278-286., DOI: 10.1212/WNL.000000000000056
  22. Martín-Aragón M., Pastor M.A., Lledó A., López-Roig S., Terol M.C., Rodríguez-Marín J. (2001). Percepción de control en el síndrome fibromiálgico: Variables relacionadas. Psicothema, 13(4): 586-591.
  23. McDonald I.W. (2011). Sclerosi multipla e altre malattie infiammatorie della mielina del SNC. In: Mutani R., Lopiano L., Durelli L., a cura di, Il Bergamini di neurologia. Torino: Cortina, cap. 20, pp. 471-503.
  24. Milani P. (2013). La relazione di coppia. In: Bonino S., a cura di, Aspetti psicologici nella sclerosi multipla. Dalla diagnosi alla gestione della malattia. Milano: Springer-Verlag, cap. 13, pp. 159-169.
  25. Nielson W.R., Jensen M.P. (2004). Relationship between changes in coping and treatment outcome in patients with fibromyalgia syndrome. Pain, 109(3): 233-241.
  26. Nielson W.R., Jensen M.P., Hill M.L. (2001). An activity pacing scale for the Chronic Pain Coping Inventory: Development in a sample of patients with fibromyalgia syndrome. Pain, 89(2):111-115.
  27. Niwald M., Wlodarczyk T., Miller E. (2015). Understanding and Treating Cognitive Function Deficits in Multiple Sclerosis. Journal of Novel Physiotherapies, 5: 139.
  28. Osborne T.L., Jensen M.P., Ehde D.M., Hanley M.A., Kraft G. (2007). Psychosocial factors associated with pain intensity, pain-related interference, and psychological functioning in persons with multiple sclerosis and pain. Pain, 127(1): 52-62.
  29. Quattropani M.C., Sorrentini L. (2008). La sclerosi multipla. In: Quattropani M.C., a cura di, Neuropsicologia clinica della sclerosi multipla. Roma: Armando, cap. 1, pp. 17-32.
  30. Paparrigopoulos T., Ferentinos P., Kouzoupis A., Koutsis G., Papadimitriou G.N. (2010). The neuropsychiatry of multiple sclerosis: focus on disorders of mood, affect and behaviour. International Review of Psychiatry, 22(1): 14-21., DOI: 10.3109/0963828090320470
  31. Payne D., McPherson K.M. (2009). Becoming mothers. Multiple sclerosis and motherhood: a qualitative study. Disability and Rehabilitation, 32(8): 629-638., DOI: 10.3109/0963828090320470
  32. Pastor M.A., López-Roig S., Rodríguez-Marín J., Martín-Aragón M., Terol M.C. Pons N. (1999). Percepción de control, impacto de la enfermedad y ajuste emocional en enfermos crónicos. Ansiedad y Estrés, 5(2-3): 299-311.
  33. Razaz N., Tremlett H., Boyce W.T., Guhn M., Joseph K., Marrie R.A. (2015). Impact of parental multiple sclerosis on early childhood development: A retrospective cohort study. Multiple Sclerosis Journal, 21, 9: 1172-1183., DOI: 10.1177/135245851455929
  34. Rivera-Navarro J., Benito-Leon J., Oreja-Guevara C., Pardo J., Bowakim Dib W., Orts E. (2009). Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis. Multiple Sclerosis, 15, 11: 1347-1355., DOI: 10.1177/135245850934591
  35. Rolland J.S. (1999). Parental illness and disability: a family systems framework. Journal of Family Therapy, 21: 242-266.
  36. Roppolo M., Mulasso A., Gollin M., Bertolotto A., Rabaglietti E. (2015). Esercizio fisico e salute psicologica in donne affette da Sclerosi Multipla: l’effetto di moderazione del livello di disabilità. Psicologia della Salute, 3: 5-23., DOI: 10.3280/PDS2015-00300
  37. Stroud N.M., Minahan C.L. (2009). The impact of regular physical activity on fatigue, depression and quality of life in persons with multiple sclerosis. Health and Quality of Life Outcomes, 7: 68., DOI: 10.1186/1477-7525-7-6
  38. Twork S., Nippert I., Scherer P., Haas J., Pöhlau D., Kugler J. (2007). Immunomodulating drugs in multiple sclerosis: compliance, satisfaction and adverse effects evaluation in a German multiple sclerosis population. Current Medical Research and Opinion, 23, 6: 1209-1215.
  39. Veauthier C. (2015). Sleep disorders in multiple sclerosis. Review. Current Neurology and Neuroscience Reports, 15, 5: 21.

Gioacchino Lavanco, Carolina Messina, Laura Clorinda Rinaldi, "In order not to die earlier". Coping strategies in women with multiple sclerosis in "PSICOLOGIA DI COMUNITA’" 2/2016, pp. 79-94, DOI:10.3280/PSC2016-002008

   

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