Evaluation of bio-psycho-social risk in pediatric oncology. Application of the Diagnostic Asisstance Therapeutic Pathway in psychoncology: preliminary results
Journal Title: PSICOLOGIA DELLA SALUTE
Author/s: Marina Bertolotti, Elvia Roccia, Giulia Zucchetti, Claudia Peirolo, Tiziana Geuna, Simona Bellini, Daniela Converso
FullText PDF: 245 KB
(DOI is like a bar code for intellectual property: to have more infomation:
The oncological illness of a child puts the whole family in front of important physical and emotional stress often resulting in imbalances and changes both on the emotional and social family aspects. In order to make a proper screening of patients and families and to make a proper sending to the specialist from the professional team (as well as to ensure an appropriate care pathway) was approved by the Piedmont Region the Diagnostic and Therapeutic Assistance Path (PDTA) in Psychoncology. This study aims to present the preliminary results of the application of "La Scheda di Complessità" (instrument of the PDTA that evaluate the biological-psychological-social-assistance complexity) within the SC Pediatric Oncology and Transplantation Center Hospital in Turin. The data were collected from July 2011 to July 2014. It referred to 308 families at the moment of the diagnosis (173 cases globally complex and 135 globally non-complex). In the 173 cases complex, the most critical area is that psychological that affects 147 cases (42%). In 80 cases, it was already carried out also the assessment at the time of the end of the therapies, which shows that 57 cases remain or become non-complex while 23 cases result complexes in the phase of the end of the therapies. This complexity can be, however, referred to the fact that some of these cases (23) were high in the social complexities while others (7) had a psychological complexity / psychiatric previous to diagnosis. "La Scheda di Complessità" therefore is a useful tool for assessing any risks in families, for choosing the appropriate intervention and for evaluating the outcome.
Keywords: Cancer patients, psychoncology, family, PDTA
- AA.VV., PDTA in psicologia oncologica, AReSS (2009). --http://www.regione.piemonte.it/sanita/cms2/documentazione/category/168-documentazione-2010-2014
- Barakat L.P., Marmer P.L. and Schwartz L.A. (2010). Quality of life of adolescents with cancer: family risks and resources. Health and Quality of Life Outcomes 8(1): 1., 10.1186/1477-7525-8-6DOI: 10.1186/1477-7525-8-6
- Bertolotti M. (2013). Aspetti psicologici: non per tutti lo stesso percorso [Psychological aspects: not for all the same path]. Epidemioliogia e Prevenzione, 37(1 suppl 1): 1-296.
- Da Silva F.M., Jacob E. and Nascimento L.C. (2010). Impact of childhood cancer on parents’ relationships: an integrative review. Journal of Nursing Scholarship, 42(3): 250-261.
- Deliberazione della Giunta Regionale 16 aprile 2013, n. 41-5670 Approvazione dello schema di convenzione tra la Regione Piemonte e la Regione Autonoma Valle d’Aosta per la riorganizzazione ed il prosieguo delle attività della Rete interregionale di Oncologia e Oncoematologia Pediatrica.
- Gritti P., Di Caprio E.L. e Resicato G. (2011). L’approccio alla famiglia in psiconcologica [The approach to the family in psychoncology]. NÓOS, 2: 115-35.
- Long K.A. and Marsland A.L. (2011). Family adjustment to childhood cancer: A systematic review. Clinical Child and Family Psychology Review, 14(1): 57-88.
- Kazak A.E. (2006). Pediatric psychosocial preventative health model (PPPHM): Research, practice and collaboration in pediatric family systems medicine. Family Systems and Health, 24: 381-395., 10.1037/1091-7518.104.22.168DOI: 10.1037/1091-7522.214.171.124
- Kazak A.E., Brier M., Alderfer M.A., Reilly A., Fooks Parker S., Rogerwick S., Ditaranto S. and Barakat L.P. (2012). Screening for psychosocial risk in pediatric cancer. Pediatric Blood & Cancer, 59(5): 822-827.
- Northouse L.L., Katapodi M.C., Schafenacker A.M. and Weiss D. (2012). The impact of caregiving on the psychological well-being of family caregivers and cancer patients. Seminars in Oncology Nursing, 28(4): 236-245.
- Pai A.L., Patiño-Fernández A.M., McSherry M., Beele D., Alderfer M.A., Reilly A.T., Hwang W. and Kazak A.E. (2008). The Psychosocial Assessment Tool (PAT2. 0): Psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer. Journal of Pediatric Psychology, 33(1): 50-62.
- Patenaude A.F. and Kupst M.J. (2005). Psychosocial functioning in pediatric cancer. Journal of Paediatric Psychology, 30(1): 9-27.
- Perricone G., Polizzi C., Morales M.R. e Fontana V. (2013). Percezione del funzionamento familiare e strategie di coping in madri di bambini affetti da neoplasia in fase tratta mentale [Perception of family functioning and coping strategies in mothers of children suffering from tumour during the treatment phase]. Psicologia della Salute, 3: 101-113., 10.3280/PDS2013-003005DOI: 10.3280/PDS2013-003005
- Pomicino L. e Zanazzo G.A. (2014). I percorsi di assistenza ai bambini guariti da tumore: l’esperienza dei Centri AIEOP [The assistance path of children survived to childhood cancer: the experience of AIEO centers]. Associazione Culturale Pediatri, 21(1): 3-7.
- Rodriguez E.M., Dunn M.J., Zuckerman T., Vannatta K., Gerhardt C.A. and Compas B.E. (2011). Cancer-related sources of stress for children with cancer and their parents. Journal of Pediatric Psychology, 37(2): 185-97.
- Stehl M.L., Kazak A.E., Alderfer M.A., Rodriguez A., Hwang W.T., Pai A.L., Boeving A. and Reilly A. (2009). Conducting a randomized clinical trial of an psychological intervention for parents/caregivers of children with cancer shortly after diagnosis. Journal of Pediatric Psychology, 34(8): 803-816.
- Veneroni L., Ripamonti C. e Clerici C.A. (2007). Tecniche d’intervento psicologico con pazienti in età evolutiva affetti da malattie organiche gravi: una rassegna degli studi empirici sull’efficacia [Techniques of psychological intervention with patients in children with serious organic disease: a review of empirical studies on the effectiveness]. Psicologia della Salute, 3: 111-142., 10.1400/9959DOI: 10.1400/9959
- Vrijmoet-Wiersma C.J., van Klink J.M., Kolk A.M., Koopman H.M., Ball L.M. and Egeler R.M. (2008). Assessment of parental psychological stress in pediatric cancer: A review. Journal of Pediatric Psychology, 33(7): 694-706.
- Witt W.P., Litzelman K., Wisk L.E., Spear H.A., Catrine K., Levin N. and Gottlieb C.A. (2010). Stress-mediated quality of life outcomes in parents of childhood cancer and brain tumor survivors: a case–control study. Quality of Life Research, 19(7): 995-1005.
Marina Bertolotti, Elvia Roccia, Giulia Zucchetti, Claudia Peirolo, Tiziana Geuna, Simona Bellini, Daniela Converso, Evaluation of bio-psycho-social risk in pediatric oncology. Application of the Diagnostic Asisstance Therapeutic Pathway in psychoncology: preliminary results in "PSICOLOGIA DELLA SALUTE" 1/2017, pp. 145-158, DOI:10.3280/PDS2017-001008