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Communication for "patient liberation". The role of new media in the case of chronic cerebrospinal venous insufficiency (CCSVI) in multiple sclerosis (MS)
Titolo Rivista: SALUTE E SOCIETÀ 
Autori/Curatori:  Ivana Matteucci 
Anno di pubblicazione:  2021 Fascicolo: 1  Lingua: Italiano 
Numero pagine:  15 P. 165-179 Dimensione file:  420 KB
DOI:  10.3280/SES2021-001012
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più:  clicca qui   qui 




The article examines the opportunities for change in new media narratives. In this case new media become tools calling for "patient liberation". A case-based qualitative study was devel-oped and a phenomenological-interpretative-anthropological narrative-based medical approach was applied to examine written narrations produced online by patients, to gain insights into their experiences of illness and underlying socio-cultural factors. We found that online narra-tive played a significant role leading to greater awareness and individual empowerment of pa-tients, and fostering mutual support and the development of community actions at the collec-tive level.
Keywords: Narrative-based medicine; communication; new media; health; multiple sclerosis; doctor-patient relationship.

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Ivana Matteucci, in "SALUTE E SOCIETÀ" 1/2021, pp. 165-179, DOI:10.3280/SES2021-001012

   

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