Medicalization, relationship with the body and sexuality in Intersex people: a qualitative investigation

Journal title PSICOLOGIA DELLA SALUTE
Author/s Sofia Pavanello-Decaro, Elisabetta Vanzini, Annalisa Anzani, Antonio Prunas
Publishing Year 2026 Issue 2026/1
Language Italian Pages 22 P. 78-99 File size 208 KB
DOI 10.3280/PDS2026-001006
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Existing studies in the literature concerning the Intersex population, – those individuals whose chromosomal, gonadal, and external genital sexes do not coincide and who cannot be categorized within man-woman dualism ‒, have investigated medical aspects. The aim of the present study is to investigate Intersex people’s subjective experiences, specifically concerning medicalization, the relationship with health care personnel, body representation, and the sexual sphere, taking into consideration their perspectives and overall well-being. To achieve this goal, a thematic analysis was conducted using NVivo 12 software on semi-structured interviews of five Intersex participants. The results obtained are analyzed and discussed drawing comparisons with existing literature. The findings highlight the need for the refinement of the Patient Centered Care Model, which takes care of the Intersex patient on multiple levels, including psychological, emotional, physical, sexual and social weel-being. Moreover, the research conducted highlight the need for a process of cultural revision of the unsatisfactory binary gender model towards a more inclusive understanding which recognize diverse experiences on Intersex individuals.

Keywords: Intersexuality, gender identity, treatment of Intersexuality, human rights, medicalization, disclosure.

  1. Zeiler, K., & Wickström, A. (2009). Why do ‘we’ perform surgery on newborn intersexed children?: The phenomenology of the parental experience of having a child with intersex anatomies. Feminist Theory, 10(3): 359–377. DOI: 10.1177/146470010934325
  2. Astle, S., Pariera, K., Anders, K. M., Brown-King, B., & Adams, M. (2024). Growing Up Intersex: A Thematic Analysis of Intersex Emerging Adults’ Key Socialization Experiences in Childhood and Adolescence. Sex Roles, 90(8): 994-1017.
  3. Balocchi, M. (2019). Intersex. Antologia multidisciplinare. Pisa: Edizioni ETS.
  4. Berger, I., Ansara Y. G., & Riggs, D. (2023). Intersex people’s experiences of medical Interventions, sex education, and physical intimacy. Psychology & Sexuality, 15(2): 278-291. DOI: 10.1080/19419899.2023.225244
  5. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3(2): 77-101.
  6. Crocetti, D. (2013). L’invisibile Intersex. Storie di corpi medicalizzati. Pisa: Edizioni ETS.
  7. De Brouwer, I. J., Suijkerbuijk, M., van de Grift, T. C., & Kreukels, B. P. (2022). First Adolescent Romantic and Sexual Experiences in Individuals with Differences of Sex Development/Intersex Conditions. Journal of Adolescent Health, 71(6): 688-695.
  8. Fricker, M. (2007). Epistemic injustice: Power and the ethics of knowing. Oxford: Oxford University Press.
  9. Hughes, I. A., Houk, C., Ahmed, S. F., Lee, P. A., & Society, L. W. P. E. (2006). Consensus statement on management of intersex disorders. Journal of pediatric urology, 2(3): 148-162.
  10. Jacobson, R., & Joel, D. (2021). Gender identity and sexuality in an online sample of intersex-identified individuals: a descriptive study. Psychology & Sexuality, 12(3): 248-260. DOI: 10.1080/19419899.2019.1711447
  11. Miano, P. (2011). Modelli di trattamento, narrazione e identità di genere nella condizione intersessuale. Psichiatria e psicoterapia, 30(1): 22-35.
  12. Minto, C. L., Liao, L. M., Woodhouse, C. R., Ransley, P. G., & Creighton, S. M. (2003). The effect of clitoral surgery on sexual outcome in individuals who have intersex conditions with ambiguous genitalia: a cross-sectional study. The Lancet, 361(9365): 1252-1257. DOI: 10.1016/S0140-6736(03)12980-
  13. Money J. W. (1968). Hermaphroditism: An inquiry into the nature of a human paradox: Ten case reports. Dissertation Abstracts International, 29(1-B): 375.
  14. Morland I. (2009). What can queer theory do for intersex?. GLQ: A Journal of Lesbian and Gay Studies, 15(2): 285-312. DOI: 10.1215/10642684-2008-13
  15. Murgia, M. (2022). God save the queer: catechismo femminista. Milano: Einaudi.
  16. Ripamonti, C. A. (2015). Manuale di psicologia della salute. Bologna: il Mulino.
  17. Ruslin, R., Mashuri, S., Rasak, M. S. A., Alhabsyi, F., & Syam, H. (2022). Semi-structured Interview: A methodological reflection on the development of a qualitative research instrument in educational studies. IOSR Journal of Research & Method in Education (IOSR-JRME), 12(1): 22-29. DOI: 10.9790/7388-120105222
  18. Sanders, C., Amyot, E., Usipuik, M., Crawford, L., Callens, N., Chanoine, J. P., & Jones, T. (2022). Lifespan healthcare transitions among individuals with intersex traits in Canada: a mixed-methods and qualitative study. BMJ open, 12(4): e055759.
  19. Santrock, J. W. (2021). Psicologia dello sviluppo (4 ed.). Milano: McGraw Hill Education.
  20. Stonewall (2022). Creating an LGBT-Inclusive Primary Curriculum. Testo disponibile al sito: https://www.stonewall.org.uk/system/files/stw_pearson_creating_an_inclusive_primary_curri culum_2022_1_-_march.pdf, consultato in data 27/07/2023
  21. Sulis, G., & Gheno, V. (2022). The Debate on language and gender in Italy, from the visibility of women to inclusive language (1980s–2020s). The Italianist, 42(1): 153-183. DOI: 10.1080/02614340.2022.212570
  22. Weaver, A. D., & Byers, E. S. (2023). Body Image and Sexual Well-Being: A Qualitative Study of Women’s Perceptions of Partner and Relationship Influences. Journal of Sex & Marital Therapy, 49(3): 299-313. DOI: 10.1080/0092623X.2022.210576

Sofia Pavanello-Decaro, Elisabetta Vanzini, Annalisa Anzani, Antonio Prunas, Medicalizzazione, relazione con il corpo e sessualità nelle persone intersex: un’indagine qualitativa in "PSICOLOGIA DELLA SALUTE" 1/2026, pp 78-99, DOI: 10.3280/PDS2026-001006