Engaging patients in health management: towards a preliminary theoretical conceptualization

Titolo Rivista PSICOLOGIA DELLA SALUTE
Autori/Curatori Serena Barello, Guendalina Graffigna, Mariarosaria Savarese
Anno di pubblicazione 2014 Fascicolo 2014/3
Lingua Inglese Numero pagine 23 P. 11-33 Dimensione file 166 KB
DOI 10.3280/PDS2014-003002
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più clicca qui

Qui sotto puoi vedere in anteprima la prima pagina di questo articolo.

Se questo articolo ti interessa, lo puoi acquistare (e scaricare in formato pdf) seguendo le facili indicazioni per acquistare il download credit. Acquista Download Credits per scaricare questo Articolo in formato PDF

Anteprima articolo

FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

Coinvolgere i pazienti nel processo di cura ("patient engagement") è oggi considerato un elemento imprescindibile per lo sviluppo e la realizzazione di sistemi sanitari sostenibili e all’avanguardia dal momento che si dimostra essere una strategia fondamentale nel raggiungimento di outcomes clinici positivi e per la riduzione della spesa sanitaria. Tuttavia, nonostante il crescente dibattito relativo a questo tema, il concetto di "patient engagement" risulta ad oggi teoricamente ed empiricamente poco formalizzato, spesso usato come sinonimo di altri concetti come "patient participation" o "patient involvement". Al fine di contribuire ad una fondazione teorica del concetto di "patient engagement", il presente studio si pone un duplice obiettivo: 1. descrivere i trend attuali relativi alla letteratura scientifica peer reviewed sul tema del "patient engagement" in termini temporali, prospettive disciplinari coinvolte e termini utilizzati per descrivere l’individuo coinvolto nel processo di cura;
2. individuare, comparare e sintetizzare le principali definizioni di engagement che stanno orientando il dibattito in quest’area, evidenziando eventuali carenze teoriche e suggerendo potenziali linee di sviluppo per la ricerca in quest’ambito. È stata condotta una revisione sistematica della letteratura dal 2002 al 2013 su tre database(PubMed/Ovid MEDLINE; Ovid PsycInfo; SCOPUS), utilizzando la seguente stringadi ricerca: "patient engagement" OR "consumer engagement" OR "client engagement" OR "citizen engagemen". Sono state condotte analisi bibliometriche sull’intero corpus di dati e analisi qualitative del contenuto su uno specifico sub campione di contributi che riportavano una specifica definizione di engagement. Su 1296 paper identificati in una prima fase di ricerca, solo 753 sono risultati pertinenti in quanto specificatamente focalizzati sul tema del "patient engagement". Di questi, solo 16 contributi presentavano una definizione esplicita di engagement qualificato come un concetto autonomo. Tuttavia, le definizioni attualmente presenti in letteratura si mostrano frammentarie e fortemente radicate nella prospettiva disciplinare degli autori proponenti. Inoltre, anche all’interno dei contributi che presentano una definizione esplicita di engagement, il framework teorico alla base risulta spesso parziale, meramente tassonomico, non contemplando la natura dinamica di tale fenomeno. Sulla base di questi risultati, il presente studio suggerisce di considerare il "patient engagement" come un concetto in evoluzione che necessita di una fondazione "ecologica" radicata nella prospettiva esperienziale dei pazienti e finalizzata a fornire insights sulle leve individuali, relazionali e organizzative alla base di questo processo.

Keywords:Coinvolgimento del paziente, gestione della salute, revisione sistematica.

  1. Abernethy A.P., Etheredge L.M., Ganz P.A., Wallace P., German R.R., Neti C. and Murphy S.B. (2010). Rapid-learning system for cancer care. Journal of Clinical Oncology, 28
  2. (27): 4268-4274. DOI: 10.1200/JCO.2010.28.5478AbrahamJ.,SickB.,AndersonJ.,BergA.,DehmerC.andTufanoA.(2011).Selectingaprovider:whatfactorsinfluencepatients’decisionmaking?JournalofHealthcareManagement,56(2):99
  3. Adeyi O., Smith O. and Robles S. (2007). Public Policy and the Challenge of Chronic Noncommunicable Diseases. Retrieved from: http://www.worldbank.org
  4. Barello S., Graffigna G. and Vegni E. (2012). Patient “engagement” as an emerging challenge for health-care services: Mapping the literature by bibliometric analysis. Nursing Research and Practice. DOI: 10.1155/2012/90593
  5. Barello S., Graffigna G., Vegni E. and Bosio A.C. (2014). The challenges of conceptualizing patient engagement in healthcare: a lexicographic literature review. Journal of Participatory Medicine. 6, e9.
  6. Barnes T., Hancock K., and Dainton M. (2013). Training nurses to support greater patient engagement in haemodialysis. Journal of renal care, 39 (S2): 10-18. DOI: 10.1111/j.1755-6686.2013.12028.
  7. Bensing J. (2000). Bridging the gap.: The separate worlds of evidence-based medicine and patient-centered medicine. Patient education and counseling, 39 (1): 17-25.
  8. Bellardita L., Graffigna G., Donegani S., Villani D., Villa S., Tresoldi V. and Valdagni R.
  9. (2012). Patient’s choice of observational strategy for early-stage prostate cancer.
  10. Neuropsychological Trends, 12: 107-116. DOI: 10.7358/neur-2012-012-bel
  11. Berwick D.M., Nolan T.W. and Whittington J. (2008). The triple aim: care, health, and cost.
  12. Health Affairs, 27 (3): 759-769. DOI: 10.1377/hlthaff.27.3.75
  13. Bodenheimer T., Wagner E.H. and Grumbach K. (2002). Improving primary care for patients
  14. with chronic illness. JAMA: the journal of the American Medical Association, 288 (15): 1909-1914. DOI: 10.1001/jama.288.14.177
  15. Bosio C.A., Graffigna G. and Scaratti G. (2012). Knowing, learning and acting in healthcare organizations and services: Challenges and opportunities for qualitative research. Qualitative Research in Organizations and Management: An International Journal, 7 (3): 256-274.
  16. Bower P., Richards D. and Lovell K. (2001). The clinical and cost effectiveness of self-help treatments for anxiety and depressive disorders in primary care: a systematic review.The British Journal of General Practice, 51 (471): 838-845.
  17. Bruni R.A., Laupacis A. and Martin D.K. (2008). Public engagement in setting priorities in healthcare. Canadian Medical Association Journal, 179 (1): 15-18. DOI: 10.1503/cmaj.07165
  18. Bruni R.A., Laupacis A. and Martin D.K. (2008). Public “engagement” in setting priorities in healthcare. Canadian Medical Association Journal, 179 (1): 15-18.
  19. Bulger R.J. (1998). The quest for mercy. The forgotten ingredient in healthcare reform. Western Journal of Medicine, 168 (1): 54-72.
  20. Buntin M.B., Damberg C., Haviland A., Kapur K., Lurie N., McDevitt R. and Marquis M.S. (2006). Consumer-directed healthcare: early evidence about effects on cost and quality. Health Affairs, 25 (6): 516-530. DOI: 10.1377/hlthaff.25.w51
  21. Cain D.J. (2002). Humanistic psychotherapies. Washington, DC: John Wiley & Sons, Inc. Carman K.L., Dardess P., Maurer M., Sofaer S., Adams K., Bechtel C. and Sweeney J.
  22. (2013). Patient and family “engagement”: A framework for understanding the elements and developing interventions and policies. Health Affairs, 32 (2): 223-231. DOI: 10.1377/hlthaff.2012.113
  23. Carpini M.X.D., Cook F.L. and Jacobs L.R. (2004). Public deliberation, discursive participation, and citizen engagement: A review of the empirical literature. Annual Review of Political Science, 7 (1): 315-344. DOI: 10.1146/annurev.polisci.7.121003.09163
  24. Church J., Saunders D., Wanke M., Pong R., Spooner C. and Dorgan M. (2002). Citizen par ticipation in health decision-making: past experience and future prospects. Journal of Public Health Policy, 1: 12-32. DOI: 10.2307/334311
  25. Cobden D.S., Niessen L.W., Barr C.E., Rutten F.F.H., and Redekop W.K. (2009). Relationships among self-management, patient perceptions of care, and health economic outcomes for decision-making and clinical practice in type 2 diabetes. Value in Health, 13 (1): 138-147. DOI: 10.1111/j.1524-4733.2009.00587.
  26. Committee on Quality Healthcare in America, Institute of Medicine (2001). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington DC: National Academy Press.
  27. Coulter A. and Magee H. (2003). The European Patient of the Future. Maidenhead: Open University Press.
  28. Coulter A. and Ellins J. (2007). Effectiveness of strategies for informing, educating and involving patients. British Medical Journal, 7609 (335): 24-27. DOI: 10.1136/bmj.39246.581169.8
  29. Coulter A. and Magee H. (2003). The European patient of the future. Maidenhead: Open University Press.
  30. Coulter A. (2011). Engaging patients in healthcare. New York: McGraw-Hill International. Coulter A., Parsons S. and Askham J. (2008). Where are the patients in decision-making about their own care? World Health Organization Regional Office for Europe.
  31. Davis R.E., Jacklin R., Sevdalis N. and Vincent C.A. (2007). Patient involvement in patient safety: what factors influence patient participation and engagement. Health Expectations, 10 (3): 259-67. DOI: 10.1111/j.1369-7625.2007.00450.
  32. Dearing R.L., Barrick C., Dermen K.H. and Walitzer K.S. (2005). Indicators of client engagement: influences on alcohol treatment satisfaction and outcomes. Psychology of Addictive Behaviors, 19 (1): 71. DOI: 10.1037/0893-164X.19.1.7
  33. DiMatteo M.R., Haskard K.B., and Williams S.L. (2007). Health beliefs, disease severity, and patient adherence: A meta-analysis. Medical Care, 45 (6): 521-528 DOI: 10.1097/MLR.0b013e318032937
  34. Donaldson L. (2003). Expert patients usher in a new era of opportunity for the NHS. British Medical Journal, 326 (7402): 1279-1280. DOI: 10.1136/bmj.326.7402.127
  35. Dunston R., Lee A., Boud D., Brodie P. and Chiarella M. (2009). Co-Production and Health System Reform–From Re-Imagining To Re-Making. Australian Journal of Public Administration, 68 (1): 39-52. DOI: 10.1111/j.1467-8500.2008.00608.
  36. Eisenberg B. (1996). Customer service in healthcare: a new era. Hospital & health services administration, 42 (1): 17-31.
  37. Estabrooks C.A., Winther C., and Derksen L. (2004). Mapping the field: a bibliometric analysis of the research utilization literature in nursing. Nursing research, 53 (5): 293-303.
  38. European Commission. (2007). Health in the European Union. Brussels. Retrieved from: http://ec.europa.eu/health/ph_publication/eb_health_en.pdf
  39. Forbat L., Cayless S., Knighting K., Cornwell J. and Kearney N. (2009). Engaging patients in healthcare: an empirical study of the role of “engagement” on attitudes and action. Patient education and counseling, 74 (1): 84-90. DOI: 10.1016/j.pec.2008.07.05
  40. Foster M.M., Earl P.E., Haines T.P. and Mitchell G.K. (2010). Unravelling the concept of
  41. consumer preference: implications for health policy and optimal planning in primary
  42. care. Health policy, 97 (2): 105-112. DOI: 10.1016/j.healthpol.2010.04.00
  43. Frosch D.L., May S.G., Rendle K.A., Tietbohl C. and Elwyn G. (2012). Authoritarian physicians
  44. and patients’ fear of being labeled ‘difficult’ among key obstacles to shared decision
  45. making. Health Affairs, 31 (5): 1030-1038. DOI: 10.1377/hlthaff.2011.057
  46. Gill P.S. (2013). Patient engagement: an investigation at a primary care clinic. International Journal of General Medicine, 6: 85-98. DOI: 10.2147/IJGM.S4222
  47. Golay A., Brock E., Gabriel R., Konrad T., Lalic N., Laville M. and Anderwald C.H. (2013). Taking small steps towards targets–perspectives for clinical practice in diabetes, cardiometabolic disorders and beyond. International journal of clinical practice, 67 (4): 322-332. DOI: 10.1111/ijcp.1211
  48. Graffigna G., Barello S. and Riva G. (2013). Technologies for patient engagement. Health Affairs. DOI: 10.1377/hlthaff.2013.027
  49. Graffigna G., Barello S. and Riva G. (2013). How to make health information technology effective: the challenge of patient engagement. Archives of physical medicine and rehabilitation, 94 (10): 2034-2035. DOI: 10.1016/j.apmr.2013.04.02
  50. Graffigna G., Barello S., Wiederhold B.K., Bosio A.C. and Riva G. (2013). Positive technology as a driver for health engagement. Annual Review of Cybertherapy and Telemedicine, 191: 9-17. DOI: 10.3233/978-1-61499-282-0-
  51. Gruman J., Rovner M.H., French M.E., Jeffress D., Sofaer S., Shaller D. and Prager D.J. (2010). From patient education to patient engagement: Implications for the field of patient education. Patient education and counseling, 78 (3): 350-356. DOI: 10.1016/j.pec.2010.02.00
  52. Helderman J.K., Schut F.T., Van Der Grinten T.E. and Van De Ven W.P. (2005). Marketoriented healthcare reforms and policy learning in the Netherlands. Journal of Health Politics, Policy and Law, 30 (1-2): 189-210. DOI: 10.1215/03616878-30-1-2-18
  53. Hibbard J.H. and Weeks E.C. (1987). Consumerism in healthcare: Prevalence and predictors. Medical Care, 1019-1032.
  54. Hibbard J.H. and Peters E. (2003). Supporting informed consumer healthcare decisions: data presentation approaches that facilitate the use of information in choice. Annual Review of Public Health, 24 (1): 413-433. DOI: 10.1146/annurev.publhealth.24.100901.14100
  55. Hibbard J.H. (2009). Using systematic measurement to target consumer activation strategies. Medical Care Research and Review, 66 (1 suppl): 9S-27S. DOI: 10.1177/107755870832696
  56. Hibbard J.H. and Greene J. (2013). What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health Affairs, 32 (2): 207-214. DOI: 10.1377/hlthaff.2012.106
  57. Hurley R.E., Keenan P.S., Martsolf G.R., Maeng D.D. and Scanlon D.P. (2009). Early experiences with consumer engagement initiatives to improve chronic care. Health Affairs, 28 (1): 277-283. DOI: 10.1377/hlthaff.28.1.27
  58. Kerridge I.H., Lowe M., Stewart C. (2013). Ethics and law for the health professions (Fourth edition). Annandale: NSW The Federation Press.
  59. Koh H.K., Brach C., Harris L.M. and Parchman M.L. (2013). A Proposed ‘Health Literate Care Model’ would constitute a systems approach to Improving patients’ engagement in care. Health Affairs, 32 (2): 357-367. DOI: 10.1377/hlthaff.2012.120
  60. Kwan B.M., Dimidjian S. and Rizvi S.L. (2010). Treatment preference, engagement, and clinical improvement in pharmacotherapy versus psychotherapy for depression. Behaviour Research and Therapy, 48 (8): 799-804. DOI: 10.1016/j.brat.2010.04.00
  61. Leape L., Berwick D., Clancy C., Conway J., Gluck P., Guest J. and Isaac T. (2009). Transforming healthcare: a safety imperative. Quality and Safety in Healthcare, 18 (6): 424-428. DOI: 10.1136/qshc.2009.03695
  62. Lee P.V. and Hoo E. (2006). Beyond consumer-driven healthcare: purchasers’ expectations of all plans. Health Affairs, 25 (6): w544-w548. DOI: 10.1377/hlthaff.25.w54
  63. Légaré F. and Witteman H.O. (2013). Shared decision making: examining key elements and barriers to adoption into routine clinical practice. Health Affairs, 32 (2): 276-284. DOI: 10.1377/hlthaff.2012.107
  64. Libreri C. and Graffigna G. (2012) Mapping online peer exchanges on diabetes. Neuropsychological Trends 12 (1): 125-134 DOI: 10.7358/neur-2012-012-librLongtinY.,SaxH.,LeapeL.L.,SheridanS.E.,DonaldsonL.andPittetD.(2010).Patientparticipation:currentknowledgeandapplicabilitytopatientsafety.MayoClinicProceedings,85(1):53-62.DOI:10.4065/mcp.2009.024
  65. Luxford K. (2013). Promoting patient based care and consumer engagement. Cancer Forum, 37 (1): 17-20.
  66. Mahmud S. (2004). Citizen participation in the health sector in rural Bangladesh: perceptions and reality. IDS Bulletin, 35 (2): 11-18. DOI: 10.1111/j.1759-5436.2004.tb00116.
  67. Mandzuk: L.L. and McMillan D.E. (2005). A concept analysis of quality of life. Journal of orthopedic nursing, 9 (1): 12-18. DOI: 10.1046/j.1365-2648.1993.18010032.
  68. McBride T. and Korczak V. (2007). Community consultation and engagement in healthcare reform. Australian Health Review, 31 (5): 13-15. DOI: 10.1071/AH070S1
  69. Mezzich J., Snaedal J., van Weel C. and Heath I. (2010). Toward person-centered medicine: From disease to patient to person. The Mount Sinai journal of medicine, 77 (3): 304-306. DOI: 10.1002/msj.2018
  70. Mittler J.N., Martsolf G.R., Telenko S.J. and Scanlon D.P. (2013). Making sense of consumer engagement initiatives to improve health and healthcare: a conceptual framework to guide policy and practice. Milbank Quarterly, 91 (1): 37-77. DOI: 10.1111/milq.1200
  71. Montgomery P., Bjornstad G. and Dennis J. (2006). Media-based behavioural treatments for behavioural problems in children. Cochrane Database Syst Rev, 1. DOI: 10.1002/14651858.CD00220
  72. Morrison A. (2001). Effectiveness of printed patient educational materials in chronic illness:
  73. a systematic review of controlled trials. Journal of Managed Pharmaceutical Care, 1 (1): 51-62. DOI: 10.1300/J234v01n01_0
  74. Mulley A.G., Trimble C. and Elwyn G. (2012). Stop the silent misdiagnosis: patients’ preferences
  75. matter. BMJ: British Medical Journal, 345: e6572-e6578. DOI: 10.1136/bmj.e657
  76. Patel N. and Rajasingam D. (2013). User engagement in the delivery and design of maternity services. Best Practice & Research Clinical Obstetrics & Gynaecology. DOI: 10.1016/j.bpobgyn.2013.04.00
  77. Pelletier L.R. and Stichler J.F. (2013). Action brief: patient engagement and activation: a health reform imperative and improvement opportunity for nursing. Nursing Outlook, 61 (1): 51-4. DOI: 10.1016/j.outlook.2012.11.00
  78. Pelzang R. (2010). Time to learn: understanding patient-centred care. British journal of nursing, 19 (14): 912.
  79. Quam L., Smith R. and Yach D. (2006). Rising to the global challenge of the chronic disease epidemic. The Lancet, 368 (9543): 1221-1223. DOI: 10.1016/S0140-6736(06)69422-
  80. Robert G.B. (2007). Bringing user experience to healthcare improvement: The concepts,
  81. methods and practices of experience-based design. Oxon, UK: Radcliffe Publishing.
  82. Robinson J.H., Callister L.C., Berry J.A. and Dearing K.A. (2008). Patient centered care and adherence: Definitions and applications to improve outcomes. Journal of the American Academy of Nurse Practitioners, 20 (12): 600-607. DOI: 10.1111/j.1745-7599.2008.00360.
  83. Rodriguez K.M. (2013). Intrinsic and Extrinsic Factors Affecting Patient engagement in Diabetes
  84. Self-Management: Perspectives of a Certified Diabetes Educator. Clinical therapeutics,
  85. 35 (2): 170-178. DOI: 10.1016/j.clinthera.2013.01.00
  86. Ryan R., Santesso N., Hill S., Lowe D., Kaufman C. and Grimshaw J. (2011). Consumeroriented
  87. interventions for evidence-based prescribing and medicines use: an overview of systematic reviews. Cochrane Database Syst Rev, 5 (5): 160-172. DOI: 10.1002/14651858
  88. CD007768.pub2 Sanders M.R. and Kirby J.N. (2012). Consumer engagement and the development, evaluation, and dissemination of evidence-based parenting programs. Behavior therapy, 43 (2): 236-250. DOI: 10.1016/j.beth.2011.01.00
  89. Sarasohn-Kahn J. (2013). A role for patients: the argument for self-care. American journal of preventive medicine, 44 (1): S16-S18. DOI: 10.1016/j.amepre.2012.09.01
  90. Schley C., Yuen K., Fletcher K. and Radovini A. (2012). Does engagement with an intensive outreach service predict better treatment outcomes in ‘high-risk’ youth? Early Intervention in Psychiatry, 6 (2): 176-184. DOI: 10.1111/j.1751-7893.2011.00338.
  91. Seligman M.E. and Csikszentmihalyi M. (2000). Positive psychology: an introduction. American psychologist, 55 (1): 5. DOI: 10.1037/0003-066X.55.1.
  92. Shine K.I. (2002). Healthcare quality and how to achieve it. Academic Medicine, 77 (1): 91-99.
  93. Simpson D.D. (2004). A conceptual framework for drug treatment process and outcomes. Journal of Substance Abuse Treatment, 27 (2): 99-121. DOI: 10.1016/j.jsat.2004.06.00
  94. Staudt M., Lodato G. and Hickman C.R. (2012). Therapists talk about the “engagement” process. Community mental health journal, 48 (2): 212-218.
  95. Stewart M. (2003). Patient-centered medicine: transforming the clinical method. Oxon, UK: Radcliffe Pub.
  96. Varkey P., Reller M.K. and Resar R.K. (2007). Basics of quality improvement in healthcare. Mayo Clinic Proceedings, 82 (6): 735-739. DOI: 10.4065/82.6.73
  97. Wagner E.H. (2001). Meeting the needs of chronically ill people. British Medicine Journal, 323 (7319): 945-946. DOI: 10.1136/bmj.323.7319.94
  98. World Health Organization (1981). Global strategy for health for all by the year 2000. Geneva: WHO.
  99. World Health Organization (2008). 2008-2013 action plan for the global strategy for the prevention and control of non-communicable diseases. Geneva: WHO.
  100. World Health Organization (2009). WHO guidelines on hand hygiene in healthcare: first global patient safety challenge. Clean care is safer care. Geneva: WHO.
  101. World Health Organization (2011). World health statistics 2011. Geneva: WHO

  • Co-production in the Public Sector Gaia Bassani, Cristiana Cattaneo, Giovanna Galizzi, pp.59 (ISBN:978-3-319-30556-1)
  • Promoting Patient and Caregiver Engagement to Care in Cancer Emanuela Saita, Chiara Acquati, Sara Molgora, in Frontiers in Psychology /2016
    DOI: 10.3389/fpsyg.2016.01660
  • An Educational Intervention to Train Professional Nurses in Promoting Patient Engagement: A Pilot Feasibility Study Serena Barello, Guendalina Graffigna, Giuliana Pitacco, Maila Mislej, Maurizio Cortale, Livio Provenzi, in Frontiers in Psychology /2017
    DOI: 10.3389/fpsyg.2016.02020
  • Patient Health Engagement Scale: Validity and reliability for Turkish patients with chronic diseases Dilara USTA, Fatoş KORKMAZ, İmatullah AKYAR, Andrea BONANOMİ, in Cukurova Medical Journal /2019 pp.1055
    DOI: 10.17826/cumj.482420
  • The experience in bariatric surgery – ASUGI of Trieste Annamaria Kulla, in AboutOpen /2020 pp.55
    DOI: 10.33393/abtpn.2020.2126
  • Engaging patients to recover life projectuality: an Italian cross-disease framework Serena Barello, Guendalina Graffigna, in Quality of Life Research /2015 pp.1087
    DOI: 10.1007/s11136-014-0846-x
  • A systematic search and critical thematic, narrative review of lifestyle interventions for the prevention and management of diabetes Andrea E. Bombak, Natalie D. Riediger, Jackson Bensley, Samuel Ankomah, Adriana Mudryj, in Critical Public Health /2020 pp.103
    DOI: 10.1080/09581596.2018.1516033
  • Psychometric properties of the Turkish version of the Patient Health Engagement Scale Esin Ateş, Ayla Bayık Temel, in International Journal of Nursing Practice e13106/2022
    DOI: 10.1111/ijn.13106
  • Health Data Visualization Literacy Skills of Young Adults with Down Syndrome and the Barriers to Inference-making Rachel Wood, Jinjuan Heidi Feng, Jonathan Lazar, in ACM Transactions on Accessible Computing /2024 pp.1
    DOI: 10.1145/3648621
  • Healthcare Ethics and Training Guendalina Graffigna, Serena Barello, pp.1268 (ISBN:9781522522379)
  • Health Literacy Guendalina Graffigna, Serena Barello, pp.392 (ISBN:9781522519287)
  • Exploring Hypertension Patient Engagement Using mHealth. A Scoping Review Debora Rosa, Matteo Peverelli, Andrea Poliani, Giulia Villa, Duilio Fiorenzo Manara, in High Blood Pressure & Cardiovascular Prevention /2024 pp.341
    DOI: 10.1007/s40292-024-00656-y
  • Patient engagement come qualificatore dello scambio tra la domanda e l'offerta di salute: il caso della cronicità Serena Barello, Guendalina Graffigna, in RICERCHE DI PSICOLOGIA 3/2015 pp.513
    DOI: 10.3280/RIP2015-003005
  • eHealth for Patient Engagement: A Systematic Review Serena Barello, Stefano Triberti, Guendalina Graffigna, Chiara Libreri, Silvia Serino, Judith Hibbard, Giuseppe Riva, in Frontiers in Psychology /2016
    DOI: 10.3389/fpsyg.2015.02013
  • Patient partenaire : de la pratique à la recherche Benoît Pétré, Gilles Louis, Bernard Voz, Alexandre Berkesse, Luigi Flora, in Santé Publique /2020 pp.371
    DOI: 10.3917/spub.204.0371
  • Transformative Healthcare Practice through Patient Engagement Emanuela Saita, Susanna Zanini, Enrico Minetti, Chiara Acquati, pp.1 (ISBN:9781522506638)
  • Meaningful patient engagement in inflammatory arthritis: development of the Patient Motivation Questionnaire Y. El Miedany, Maha El Gaafary, Sally Youssef, Nadia El Aroussy, in Clinical Rheumatology /2024 pp.1793
    DOI: 10.1007/s10067-017-3605-x
  • The Caregiving Health Engagement Scale (CHE-s): development and initial validation of a new questionnaire for measuring family caregiver engagement in healthcare Serena Barello, Cinzia Castiglioni, Andrea Bonanomi, Guendalina Graffigna, in BMC Public Health 1562/2019
    DOI: 10.1186/s12889-019-7743-8
  • Health Literacy Emanuela Saita, Susanna Zanini, Enrico Minetti, Chiara Acquati, pp.306 (ISBN:9781522519287)
  • Effects on patient activation of eHealth support in addition to standard care in patients after radical prostatectomy: Analysis of secondary outcome from a randomized controlled trial Camilla Wennerberg, Mirjam Ekstedt, Kristina Schildmeijer, Amanda Hellström, Rabie Adel El Arab, in PLOS ONE /2024 pp.e0308555
    DOI: 10.1371/journal.pone.0308555
  • Predictors of the Use of a Mental Health–Focused eHealth System in Patients With Breast and Prostate Cancer: Bayesian Structural Equation Modeling Analysis of a Prospective Study Nuhamin Gebrewold Petros, Jesper Alvarsson-Hjort, Gergö Hadlaczky, Danuta Wasserman, Manuel Ottaviano, Sergio Gonzalez-Martinez, Sara Carletto, Enzo Pasquale Scilingo, Gaetano Valenza, Vladimir Carli, in JMIR Cancer /2023 pp.e49775
    DOI: 10.2196/49775
  • Measuring patient engagement: development and psychometric properties of the Patient Health Engagement (PHE) Scale Guendalina Graffigna, Serena Barello, Andrea Bonanomi, Edoardo Lozza, in Frontiers in Psychology /2015
    DOI: 10.3389/fpsyg.2015.00274
  • Promoting Patient Engagement and Participation for Effective Healthcare Reform Guendalina Graffigna, Serena Barello, pp.192 (ISBN:9781466699922)

Serena Barello, Guendalina Graffigna, Mariarosaria Savarese, Engaging patients in health management: towards a preliminary theoretical conceptualization in "PSICOLOGIA DELLA SALUTE" 3/2014, pp 11-33, DOI: 10.3280/PDS2014-003002