Organizzare network socio-sanitari: il lavoro di pazienti e familiari nell’orchestrazione dei servizi di cura

Journal title STUDI ORGANIZZATIVI
Author/s Attila Bruni, Francesco Miele, Enrico Maria Piras
Publishing Year 2017 Issue 2017/1
Language Italian Pages 22 P. 67-88 File size 237 KB
DOI 10.3280/SO2017-001003
DOI is like a bar code for intellectual property: to have more infomation click here

Below, you can see the article first page

If you want to buy this article in PDF format, you can do it, following the instructions to buy download credits

Article preview

FrancoAngeli is member of Publishers International Linking Association, Inc (PILA), a not-for-profit association which run the CrossRef service enabling links to and from online scholarly content.

Over the last years, national and local institutions have implemented strategies to integrate health and social care. At the same time, scientific debate has focused on institutional and organizational interventions aimed at coordinate health providers and social careers. In this debate, the role of patients and their caregivers has been overlooked. With this article, we aim at filling this gap, drawing on a qualitative research carried out in the Province of Trento and focused on the case of elderly people with chronic diseases. In particular, on a practice based approach, we show how family plays a central role, enrolling professionals and informal caregiver, coordinating their actions and fulfilling the holes in the emerging network.

Keywords: Health and social care, elderly patients, networks of care, practice-based studies, inter-organizational networks.

  1. Altenstetter, C., Björkman, J.W. (eds.) (1997), Health Policy Reform, National Variations and Globalization, London, Macmillan.
  2. Ancker, J.S., Witteman, H.O., Hafeez, B., Provencher, T., Van de Graaf, M., Wei, E. (2015), “The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers”, Journal of Medical Internet Research, 17, 6: e137.
  3. Barretta, A.D. (a cura di) (2009), L’integrazione socio-sanitaria, Bologna, il Mulino.
  4. Bate, S.P. (1997), “Whatever happened to organizational anthropology? A review of organizational ethnography and anthropological studies”, Human Relations, 50: 1147-1175. DOI: 10.1177/001872679705000905
  5. Bissolo G., Fazzi, L. (2005), Costruire l’integrazione socio sanitaria, Roma, Carrocci.
  6. Bourdieu, P. (1972), Esquisse d’une théorie de la pratique précédé de trois etudes de ethnologie kabyle, Switzerland: Librairie Droz SA (trad. it., Per una teoria della pratica, Milano, Cortina, 2003).
  7. Brizzi, L., Cava, F. (2003), L’integrazione socio-sanitaria: il ruolo dell’assistente sociale, Roma, Carocci Faber.
  8. Bruni, A., Gherardi, S. (2007), Studiare le pratiche lavorative, Bologna, il Mulino.
  9. Bruni, A., Gherardi, S., Parolin, L.L. (2007), “Knowing in a system of fragmented knowledge”, Mind, Culture, and Activity, 14: 83-102. DOI: 10.1080/10749030701307754
  10. Bruni, A., Rizzi, C. (2013), “Looking for Data in Diabetes Healthcare”, Science & Technology Studies, 26: 29-43. DOI: 10.1186/2047-2501-2-3
  11. Corradi, G., Gherardi, S., Verzelloni, L. (2010), “Through the practice lens: Where is the bandwagon of practice-based studies heading?”, Management Learning, 41: 265-283. DOI: 10.1177/1350507609356938
  12. Corbin, J., Strausss, A. (1985), “Managing chronic illness at home: Three lines of work”, Qualitative Sociology, 8: 224-247. DOI: 10.1007/BF00989485.
  13. Danholt, P., Langstrup, H. (2012), “Medication as infrastructure: Decentring self-care”, Culture Unbound: Journal of Current Cultural Research, 4: 513-532.
  14. Degani, L., Mozzanica, R. (2009), Integrazione Socio-Sanitaria, le ragioni, le regioni, gli interventi, Santarcangelo di Romagna, Maggioli.
  15. Della Puppa, F. (2012), “Being Part of the Family: Social and Working Conditions of Female Migrant Care Workers in Italy”, NORA-Nordic Journal of Feminist and Gender Research, 20: 182-198. DOI: 10.1080/08038740.2012.685494
  16. Di Nicola, P., Pavesi, N. (2012), “L’integrazione delle politiche con particolare riguardo all’integrazione socio-sanitaria”, in Bertin, G. (a cura di), Welfare Regionale in Italia, Venezia, Edizioni Ca’ Foscari, pp. 209-265.
  17. Ferrario, P. (2002), “Condizioni per un efficace processo programmatorio dei piani di zona”, Mo.VI., Fogli di informazione e di coordinamento: 21-23.
  18. Foglietta, F., Toniolo, F. (a cura di) (2012), Nuovi modelli di governance e integrazione socio-sanitaria, Milano, FrancoAngeli.
  19. Folgheraiter, F. (2009), “Integrazione socio-sanitaria”, Lavoro Sociale, 9(3): 435-448.
  20. Gherardi, S. (2003), “Sapere situato e ambiguità decisionale in una comunità di pratiche”, Studi Organizzativi, 3: 159-183.
  21. Gherardi, S. (2010), “Telemedicine: A practice-based approach to technology”, Human relations, 63: 501-524. DOI: 10.1177/0018726709339096
  22. Gherardi, S., Nicolini, D. (2004), Apprendimento e conoscenza nelle organizzazioni, Roma, Carocci.
  23. Gherardi, S., Strati, A. (a cura di) (2004), La telemedicina. Fra tecnologia e organizzazione, Roma, Carocci.
  24. Greenhalgh, T. (2009), “Chronic illness: beyond the expert patient”, British Medical Journal, 338: 629-631.
  25. ISTAT (2015), Indagine sugli interventi e i servizi sociali dei comuni singoli e associati reperibile a http://www.istat.it/it/archivio/166482.
  26. Jowsey, T., Dennis, S., Yen, L., Mofizul Islam, M., Parkinson, A., Dawda, P. (2016), “Time to manage: patient strategies for coping with an absence of care coordination and continuity”, Sociology of Health & Illness, 38: 854-873. DOI: 10.1111/1467-9566.12404
  27. King, N. (1998), “Template analysis”, in Symon, G., Cassel, C. (eds.), Qualitative Methods and Analysis in Organizational Research: A Practical Guide, Thousand Oaks, CA, Sage: 118-134.
  28. King, N. (2004), “Using templates in the thematic analysis of texts”, in Cassell, C., Symon, G. (eds.), Essential Guide to Qualitative Methods in Organizational Research, London, Sage, pp. 256-270.
  29. Langstrup, H. (2013), “Chronic care infrastructures and the home”, Sociology of Health & Illness, 35: 1008-1022. DOI: 10.1111/1467-9566.12013
  30. Langstrup, H., Iversen, L.B., Vind, S., Erstad, T.L. (2013), “The Virtual Clinical Encounter: Emplacing Patient 2.0 in Emerging Care Infrastructures”, Science & Technology Studies, 26: 44-60.
  31. Lusardi, R. (2015), “Pratiche di welfare nel terzo millennio: verso l’integrazione sociosanitaria tra organizzazioni, tecnologie e professionisti”, Salute e Società, 3: 185-208.
  32. May, C. (2010), “Retheorizing the clinical encounter: Normalization processes and the corporate ecologies of care”, in Scambler, G, Scambler, S. (eds.), Assaults on the Lifeworld: New Directions in the Sociology of Chronic and Disabling Conditions, London, Routledge, pp. 129-145.
  33. Miele, F., Coletta, C., Piras, E.M., Bruni, A., Zanutto, A. (2014), “GPs and elderly patients: organizing a care network”, in Mikucka, M., Sarracino, F. (eds.), Beyond Money: The Social Roots of Life Satisfaction and Health, Nova Publisher, New York, pp. 151-164.
  34. Miele, F., Piras, E.M., Bruni, A., Coletta, C., Zanutto, A. (2016), “Gestire il fardello della cura: le reti di sostegno agli anziani fuori dalle istituzioni sanita-rie”, Autonomie locali e servizi sociali, 1: 163-178. DOI: 10.1447/83853
  35. Moen, A., Brennan, P.F. (2005), “Health@ Home: the work of health information management in the household (HIMH): implications for consumer health informatics (CHI) innovations”, Journal of the American Medical Informatics Association, 12: 648-656.
  36. Nicolini, D. (2007), “Stretching out and expanding work practices in time and space: the case of telemedicine”, Human Relations, 60: 889-920. DOI: 10.1177/0018726707080080
  37. Nicolini, D. (2012), Practice Theory, Work, and Organization: An Introduction, Oxford, Oxford University Press.
  38. Nicolini, D., Gherardi, S., Yanow, D. (2003), Knowing in Organizations: A Practice-Based Approach, Armonk, North Castle, ME Sharpe.
  39. Osservatorio sulle aziende e sul sistema sanitario italiano (2015), Rapporto Oasi 2015, Università Bocconi, Milano.
  40. Oudshoorn, N. (2008), “Diagnosis at a distance: the invisible work of patients and healthcare professionals in cardiac telemonitoring technology”, Sociology of Health and Illness, 30: 272-288.
  41. Parsons, T. (1951), The Social System, New York, Free Press.
  42. Piras, E.M., Zanutto, A. (2014), “One day it will be you who tells us doctors what to do!”. Exploring the” Personal” of PHR in pediatric diabetes management”, Information Technology & People, 27: 421-439, DOI: 10.1108/ITP-02-2013-0030.
  43. Pols, J. (2013), “Knowing patients: turning patient knowledge into science”, Science, Technology & Human Values, 39: 73-97. DOI: 10.1177/0162243913504306.
  44. Saltman, R.B., Bankauskaite, V., Vrangbaek, K. (eds.) (2007), Decentralization in Health Care, European Observatory on Health Systems and Policies, London, Open University.
  45. Spradley, J.P. (1979), Ethnographic Interview, Orlando, Harcourt Brace Jonanovich College Publishers.
  46. Star, S.L. (1991), The Sociology of the Invisible: The Primacy of Work in the Writings of Anselm Strauss, in Maines, D. (ed.), Social Organization and Social Process: Essays in Honor of Anselm Strauss, Aldine de Gruyter, Hawthorne, NY, pp. 265-283.
  47. Star, S.L., Strauss, A. (1999), “Layers of silence, arenas of voice: The ecology of visible and invisible work”, Computer Supported Cooperative Work (CSCW), 8: 9-30. DOI: 10.1023/A:1008651105359
  48. Tousijn, W. (2012), “Integrating health and social care: Interprofessional relations of multidisciplinary teams in Italy”, Current Sociology, 60: 522-537. DOI: 10.1177/0011392112438335
  49. Townsend, A., Wyke, S., Hunt, K. (2006), “Self-managing and managing self: practical and moral dilemmas in accounts of living with chronic illness”, Chronic Illness, 2: 185-94. DOI: 10.1177/17423953060020031301
  50. Tsoukas, H., Mylonopoulos, N. (eds.). (2003), Organizations as Knowledge Systems, New York, Palgrave Macmillan.
  51. Uijen, A.A., Schers, H.J., Schellevis, F.G., Van Den Bosch, W.J. (2012), “How unique is continuity of care? A review of continuity and related concepts”, Family Practice, 29: 264-271.
  52. Unruh, K.T., Skeels, M., Civan-Hartzler, A., Pratt, W. (2010), “Transforming clinic environments into information workspaces for patients”, in Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, ACM: 183-192.
  53. Unruh, K.T., Pratt, W. (2007), “Patients as actors: the patient’s role in detecting, preventing, and recovering from medical errors”, International Journal of Medical Informatics, 76: 236-244.

Attila Bruni, Francesco Miele, Enrico Maria Piras, Organizzare network socio-sanitari: il lavoro di pazienti e familiari nell’orchestrazione dei servizi di cura in "STUDI ORGANIZZATIVI " 1/2017, pp 67-88, DOI: 10.3280/SO2017-001003