Il volontariato nelle cure palliative: religiosità, rappresentazioni esplicite della morte e implicite di Dio tra deumanizzazione e burnout

Titolo Rivista PSICOLOGIA DELLA SALUTE
Autori/Curatori Ines Testoni, Stefano Falletti
Anno di pubblicazione 2016 Fascicolo 2016/2
Lingua Italiano Numero pagine 16 P. 27-42 Dimensione file 201 KB
DOI 10.3280/PDS2016-002002
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In Italia il volontariato è una realtà sociale la cui importanza cresce costantemente. Le ricerche sul volontariato nel campo delle cure palliative stanno dimostrando come questo tipo di intervento sia di grande aiuto per le famiglie e per gli operatori sanitari. Un numero minore di ricerche si è però rivolta direttamente a queste persone che decidono di dedicare il loro tempo a chi muore. Lo studio si pone l’obiettivo di indagare alcune variabili psicologiche che vengono ritenute importanti nel mondo del volontariato delle cure palliative. Si tratta di una categoria di caregiver studiata meno rispetto ad altre figure che intervengono in questo campo. A 71 volontari di importanti organizzazioni del Nord Italia, che svolgono attività di supporto a domicilio, in day hospital o hospice, sono stati somministrati individualmente strumenti per indagare i livelli di ansia riguardo la morte, le rappresentazioni della morte, gli stili di coping, i livelli di burnout, di stress e la deumanizzazione delle persone assistite. Con un sottogruppo di 52 persone disponibili è stata indagata la rappresentazione di Dio implicita, per verificare se Dio fosse inteso come reale o come astrazione. I risultati mettono in evidenza la relazione tra deumanizzazione e ansia di morte, la quale a sua volta è in rapporto ad alcuni tratti del burnout e allo stress.;

Keywords:Volontariato, cure palliative, rappresentazioni della morte, immagine implicita di Dio, deumanizzazione, burnout.

  1. Esmond J. and Dunlop P. (2004). Developing the Volunteer Motivation Inventory to assess the underlying motivational drives of volunteers in Western Australia. Perth: Lotterywest and CLAN WA.
  2. Falvo R., Capozza D., Di Bernardo G.A. and Pagani A. (2015). Can imagined contact favor the humanization of the homeless? TPM-Testing, Psychometrics, Methodology in Applied Psychology, 22: 23-30. DOI: 10.4473/TPM22.1.
  3. Fonseca L.M. and Testoni I. (2011). The emergence of thanatology and current practice in Death Education. Omega-Journal of Death and Dying, 64: 157-169. DOI: 10.2190/OM.64.2.d
  4. Garelli F., Guizzardi G. e Pace E., a cura di (2003). Un singolare pluralismo. Indagine sul pluralismo morale e religioso in Italia [A singular pluralism. Investigation of moral and religious pluralism in Italy]. Bologna: Il Mulino.
  5. Gomes B. (2006). Factors influencing death at home in terminally ill patients with cancer: Systematic review. British Medical Journal, 332 (7540): 515-521. DOI: 10.1136/bmj.38740.614954.5
  6. Greenberg J., Koole S.L. and Pyszczynski T. (2004). Handbook of experimental existential psychology. New York: Guilford Press.
  7. Harmon-Jones E., Simon L., Greenberg J., Pyszczynski T., Solomon S. and McGregor H. (1997). Terror management theory and self-esteem: Evidence that increased self-esteem reduces morality salience effects. Journal of Personality and Social Psychology, 72: 24-36. DOI: 10.1037/0022-3514.72.1.2
  8. Houle B.J., Sagarin B.J. and Kaplan M.F. (2005). A functional approach to volunteerism: Do volunteer motives predict task preference? Basic and Applied Social Psychology, 27 (4): 337-344. DOI: 10.1207/s15324834basp2704_
  9. Karpinski A. and Steinman R.B. (2006). The single Category Implicit Association Test as a measure of implicit social cognition. Journal of Personality and Social Psychology, 91: 16-32. DOI: 10.1037/0022-3514.91.1.1
  10. Luijkx K.G. and Schols J.M. (2009). Volunteers in palliative care make a difference. Journal of Palliative Care, 25(1): 30-39.
  11. Marta E. e Pozzi M. (2007). Psicologia del volontariato [Psychology of volunteering]. Roma: Carocci.
  12. Morris S., Wilmot A., Hill M., Ockenden N. and Payne S. (2012). A narrative literature review of the contribution of volunteers in the end-of-life care services. Palliative Medicine, 27: 428-436. DOI: 10.1177/026921631245360
  13. Ronconi L., Testoni I. and Zamperini A. (2009). Validation of the Italian version of the Reasons for Living Inventory, TPM − Testing, Psychometrics, Methodology in Applied Psychology, 16: 151-159. DOI: 10.4473/TPM.16.3.
  14. Rosenblatt A., Greenberg J., Solomon S. and Pyszcynski T. (1989) Evidence for Terror Management Theory. Journal of Personality and Social Psychology, 57: 4: 681-690. DOI: 10.1037/0022-3514.57.4.68
  15. Schaufeli W.B., Leiter M.P., Maslach C. and Jackson S.E. (1996). Burnout inventory general survey. In: Maslach C., Jackson S.E. and Leiter M.P., editors, The Maslach Burnout Inventory (3rded)-Test Manual. Palo Alto, CA: Consulting Psychologist Press.
  16. Sica C., Magni C., Ghisi M., Altoè G., Sighinolfi C. e Chiri L.R. (2008). Coping orientation of problem experienced − Nuova versione italiana: uno strumento per la misura degli stili di coping [Coping orientation of problem experienced − New Italian version: an instrument for the measurement of coping styles]. Psicoterapia Cognitiva e Comportamentale, 14 (1): 27-53.
  17. Testoni I., Ancona D. and Ronconi L. (2015). The ontological representation of death, Omega-Journal of Death and Dying, 70: 60-81. DOI: 10.1177/003022281456828
  18. Testoni I., Sposito D.D., De Cataldo L. and Ronconi L. (2014). Life at all costs? Italian social representations of end-of-life decisions after President Napolitano’s speech − margin notes on withdrawing artificial nutrition and hydration. Nutritional Therapy & Metabolism, 32: 121-135. DOI: 10.5301/NTM.2014.1248
  19. Testoni I., Lazzarotto Simoni J. and Di Lucia Sposito D. (2013). Representation of death and social management of the limit of life: Between resilience and irrationalism. Nutritional Therapy & Metabolism, 31: 192-198. DOI: 10.5301/NTM.2013.1158
  20. Testoni I., Visintin E.P., Capozza D., Carlucci M.C. and Shams M. (2015). The implicit image of God: God as reality and psychological well-being. Manuscript under review.
  21. Trifiletti E., Di Bernardo G.A., Falvo R. and Capozza D. (2014). Patients are not fully human: A nurses’ coping response to stress. Journal of Applied Social Psychology, 4: 768-777. DOI: 10.1111/jasp.1226
  22. Vaes J. and Muratore M. (2013). Defensive dehumanization in the medical practice: A cross-sectional study from a health care worker’s perspective. British Journal of Social Psychology, 52: 180-190. DOI: 10.1111/bjso.1200
  23. Watson M. (2005). Oxford Handbook of Palliative Care. Oxford: Oxford University Press.
  24. Wilson D.M., Justice C., Thomas R., Sheps S., MacAdam M. and Brown M. (2005). End-of-life volunteers: A systematic review of the literature. Health Service Management Research, 18: 244-257. DOI: 10.1258/09514840577451862
  25. WIN-Gallup International (2012). Global index of religiosity and atheism. Retrieved from: http://www.scribd.com/doc/136318147/Win-gallup-International-Global-Index-of-Religiosity-and-Atheism-2012.
  26. Yeung A.B. (2004). The octagonal model of volunteer motivation: Results of a phenomenological analysis. Voluntas: International Journal of Voluntary and Nonprofit Organizations, 1: 21-46. DOI: 10.1023/B:VOLU.0000023632.89728.f
  27. Zamperini A. (2013). Banalità dell’indifferenza. Ambivalenza di un sentimento (non sempre) al servizio del male [The banality of indifference. Ambivalence of a feeling (not always) at the service of evil]. Psicoterapia e Scienze Umane, XLVII, 2: 349-368. DOI: 10.3280/PU2013-002014
  28. Ambrosini M. (2005). Scelte solidali. L’impegno per gli altri in tempi di soggettivismo [Solidarity choices. The commitment to others in times of subjectivism]. Bologna: Il Mulino.
  29. Bruni L. e Zamagni S. (2004). Economia civile. Efficienza, equità, felicità pubblica [Civil economy. Efficiency, equity, public happiness]. Bologna: Il Mulino.
  30. Capozza D., Falvo R., Favara I. and Trifiletti E. (2013). The relationship between direct and indirect cross-group friendships and outgroup humanization: Emotional and cognitive mediators. TPM-Testing, Psychometrics, Methodology in Applied Psychology, 20: 383-398. DOI: 10.4473/TPM20.4.
  31. Capozza D., Trifiletti E., Vezzali L. and Favara I. (2013). Can intergroup contact improve humanity attributions? International Journal of Psychology, 48: 527-541. DOI: 10.1080/00207594.2012.68813
  32. Capozza D., Visintin E.P., Falvo R. e Testoni I. (2015). Deumanizzazione del paziente oncologico nei contesti medici [Dehumanization of the cancer patient in medical contexts]. Salute e società, 2: 74-86. DOI: 10.3280/SES2015-00200
  33. Carver C.S., Scheier M.F. and Weintraub J.K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56: 267-283. DOI: 10.1037/0022-3514.56.2.26
  34. Censis (2013). 46° Rapporto sulla situazione sociale del Paese/2012 [46th report on the social situation of the country/2012]. Retrieved from: http://www.censis.it/10?shadow_ricerca=120989.
  35. Collett L. and Lester D. (1969). The fear of death and the fear of dying. Journal Of Psychology, 72: 179-81.
  36. Costantini M. e Borreani C. (2008). Migliorare le qualità delle cure di fine vita [Improve the quality of end-life care]. Trento: Erickson.
  37. Daaleman T.P., Usher B.M., Williams S.W., Rawlings J. and Hanson L.C. (2008). An exploratory study of spiritual care at the end of life. Annals of Family Medicine, 6(5): 406-411. DOI: 10.1370/afm.88
  38. De Carlo N.A., Falco A. e Capozza D. (2008). Test di valutazione del rischio stress lavoro-correlato nella prospettiva del benessere organizzativo. Milano: FrancoAngeli.

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Ines Testoni, Stefano Falletti, Il volontariato nelle cure palliative: religiosità, rappresentazioni esplicite della morte e implicite di Dio tra deumanizzazione e burnout in "PSICOLOGIA DELLA SALUTE" 2/2016, pp 27-42, DOI: 10.3280/PDS2016-002002