Self-care in heart failure patients: major results of a 7-year research program in Italy

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Ercole Vellone, Marco Paturzo, Fabio D’Agostino, Antonella Mottola, Antonio Petruzzo, Rosaria Alvaro, Barbara Riegel
Anno di pubblicazione 2017 Fascicolo 2017/1
Lingua Inglese Numero pagine 14 P. 51-64 Dimensione file 703 KB
DOI 10.3280/SES2017-001005
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più clicca qui

Qui sotto puoi vedere in anteprima la prima pagina di questo articolo.

Se questo articolo ti interessa, lo puoi acquistare (e scaricare in formato pdf) seguendo le facili indicazioni per acquistare il download credit. Acquista Download Credits per scaricare questo Articolo in formato PDF

Anteprima articolo

FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

Self-care improves patients’ outcomes in heart failure (HF). In this article we report the main results of a 7-year research program conducted in Italy. First, we established validity and reliability of the Self-Care of HF Index v.6.2 and the Caregiver Contribution to Self-Care of HF Index in the Italian population. Second, we tested the situation-specific theory of HF self-care that showed adequate fit to the data. Third, we showed in a sample of 1.192 HF patients that only about the 20% of them performs adequate self-care. Forth, we described caregiver contribution to self-care in a sample of 515 HF caregivers and we showed a low level of caregiver contribution to HF self-care. Fifth, we showed that patients and caregivers influence each other self-care. Six, we found that self-care confidence mediates between cognition and self-care, and comorbidity moderates between self-care confidence and self-care. Intervention studies are needed to improve self-care in Italian HF patients.

Keywords:Self-care; heart failure; caregivers; carers; cognition; comorbidity

  1. Ausili D., Bezze S., Canizzaro C., Bulgheroni M., Toolbert D., Genovese S. & Di Mauro S. (2015). Valutazione del self-care nelle persone con diabete di tipo 2: traduzione e validazione della Summary of Diabetes Self-Care Activities. Professioni Infermieristiche, 68(1): 9-18.
  2. Ausili D., Masotto M., Dall’Ora C., Salvini L. & Di Mauro S. (2014). A literature review on self-care of chronic illness: definition, assessment and related outcomes. Professioni Infermieristiche, 67(3): 180-189.
  3. Ausili D., Rebora P., Di Mauro S., Riegel B., Valsecchi M.G., Paturzo M., Alvaro R., Vellone E. (2016). Clinical and socio-demographic determinants of self-care behaviours in patients with heart failure and diabetes mellitus: a multicentre cross-sectional study. International Journal of Nursing Studies, 63: 1-27.
  4. Barbaranelli C., Lee C.S., Vellone E. & Riegel B. (2014). Dimensionality and reliability of the self-care of heart failure index scales: further evidence from confirmatory factor analysis. Research in Nursing and Health, 37(6): 524–537.
  5. Bekelman D.B., Rumsfeld J.S., Havranek E.P., Yamashita T.E., Hutt E., Gottlieb S.H., Dy S.M., Kutner J.S. (2009). Symptom burden, depression, and spiritual well-being: a comparison of heart failure and advanced cancer patients. Journal of General Internal Medicine, 24(5):592-598.
  6. Bidwell J.T., Vellone E., Lyons K.S., D’Agostino F., Riegel B., Juárez-Vela R., Hiatt S.O., Alvaro R., Lee C.S. (2015). Determinants of heart failure self-care maintenance and management in patients and caregivers: A dyadic analysis. Research in Nursing & Health, 38(5): 392-402.
  7. Buck H.G., Dickson V.V., Fida R., Riegel B., D’Agostino F., Alvaro R. & Vellone E. (2015). Predictors of hospitalization and quality of life in heart failure: A model of comorbidity, self-efficacy and self-care. International Journal of Nursing Studies, 52(11): 1714-1722.
  8. Charlson M.E., Pompei P., Ales K.L. & MacKenzie C.R. (1987). A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. Journal of Chronic Diseases, 40(5): 373–383. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/3558716
  9. Cocchieri A., Riegel B., D’Agostino F., Rocco G., Fida R., Alvaro R. & Vellone E. (2015). Describing self-care in Italian adults with heart failure and identifying determinants of poor self-care. European Journal of Cardiovascular Nursing, 14(2): 126-136. DOI: 10.1177/147451511351844
  10. Cook C., Cole G., Asaria P., Jabbour R. & Francis D.P. (2014). The annual global economic burden of heart failure. International Journal of Cardiology, 171(3): 368-376.
  11. Dickson V.V, Buck H. & Riegel B. (2011). A qualitative meta-analysis of heart failure self-care practices among individuals with multiple comorbid conditions. Journal of Cardiac Failure, 17(5): 413-419.
  12. Dickson V.V., Buck H. & Riegel B. (2013). Multiple Comorbid Conditions Challenge Heart Failure Self-Care by Decreasing Self-Efficacy. Nursing Research, 62(1): 2-9.
  13. Folstein M.F., Folstein S.E. & McHugh P.R. (1975). Mini Mental State. Apractical method for grading the cognitive state of the patients for the clinicians. Journal of Psychiatric Research, 12: 189-198.
  14. Gini R., Francesconi P., Mazzaglia G., Cricelli I., Pasqua A., Gallina P., et al. (2013). Chronic disease prevalence from Italian administrative databases in the VALORE project: a validation through comparison of population estimates with general practice databases and national survey. BMC Public Health, 13: 15. DOI: 10.1186/1471-2458-13-1
  15. Hajduk A.M., Kiefe C.I., Person S.D., Gore J.G. & Saczynski J.S. (2013). Cognitive Change in Heart Failure: A Systematic Review. Circulation Cardiovascular Quality and Outcomes, 6(4): 451-460. DOI: 10.1161/CIRCOUTCOMES.113.00012
  16. Heo S., Moser D.K., Lennie T.A., Riegel B. & Chung M.L. (2008). Gender differences in and factors related to self-care behaviors: A cross-sectional, correlational study of patients with heart failure. International Journal of Nursing Studies, 45(12): 1807-1815.
  17. Jaarsma T., Arestedt K.F., Martensson J., Dracup K. & Stromberg A. (2009). The European Heart Failure Self-care Behaviour scale revised into a nine-item scale (EHFScB-9): a reliable and valid international instrument. European Journal of Heart Failure, 11(1): 99-105.
  18. Jaarsma T., Klompstra L., Ben Gal T., Boyne J., Vellone E., Bäck M., et al. (2015). Increasing exercise capacity and quality of life of patients with heart failure through Wii gaming: the rationale, design and methodology of the HF-Wii study; a multicentre randomized controlled trial. European Journal of Heart Failure, 17(7): 743.8.
  19. Kato N., Kinugawa K., Nakayama E., Tsuji T., Kumagai Y., et al. (2013). Insufficient self-care is an independent risk factor for adverse clinical outcomes in Japanese patients with heart failure. International Heart Journal, 54(6): 382-389.
  20. Kenny D.A., Kashy D.A. & Cook W.L. (2006). Dyadic Data Analysis. New York: The Guildford Press.
  21. Lee C.S., Vellone E., Lyons K.S., Cocchieri A., Bidwell J.T., D’Agostino F. Riegel B., et al. (2015). Patterns and predictors of patient and caregiver engagement in heart failure care: A multi-level dyadic study. International Journal of Nursing Studies, 52(2): 588-97.
  22. Liu M.H., Wang C.H., Huang Y.Y., Cherng W.J. & Wang K.W. (2014). A correlational study of illness knowledge, self-care behaviors, and quality of life in elderly patients with heart failure. Journal of Nursing Research, 22(2): 136-145. DOI: 10.1097/JNR.000000000000002
  23. Lyons K.S., Vellone E., Lee C.S., Cocchieri A. Bidwell J.T., D’Agostino F., Riegel B. et al. (2015). A Dyadic Approach to Managing Heart Failure With Confidence. The Journal of Cardiovascular Nursing, 30(4 Suppl 1): S64–71. DOI: 10.1097/JCN.000000000000023
  24. McMurray J.J., Adamopoulos S., Anker S.D., Auricchio A., Bohm M., Dickstein K., et al. (2012). ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: The Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart. European Journal of Heart Failure, 14(8): 803–869.
  25. Mozaffarian D., Benjamin E.J., Go A.S., Arnett D.K., Blaha M.J., Cushman M., et al. (2014). Heart Disease and Stroke Statistics-2015 Update: A Report From the American Heart Association. Circulation, 131(4): e29–322. DOI: 10.1161/CIR.000000000000015
  26. Riegel B., Carlson B., Moser D.K., Sebern M., Hicks F.D. & Roland V. (2004). Psychometric testing of the self-care of heart failure index. Journal of Cardiac Failure, 10(4): 350-360.
  27. Riegel B. & Dickson V.V. (2008). A situation-specific theory of heart failure self-care. Journal of Cardiovascular Nursing, 23(3): 190-196. DOI: 10.1097/01.JCN.0000305091.35259.8
  28. Riegel B., Dickson V.V. & Faulkner K.M. (2016). The Situation-Specific Theory of Heart Failure Self-Care: Revised and Updated. Journal of Cardiovascular Nursing, 31(3): 226-35 http://doi.org/10.1097/JCN.0000000000000244
  29. Riegel B., Lee C.S. & Dickson V.V. (2011). Self care in patients with chronic heart failure. Nature Reviews. Cardiology, 8(11): 644-654.
  30. Riegel B., Lee C.S., Dickson V.V & Carlson B. (2009). An update on the self-care of heart failure index. Journal of Cardiovascular Nursing, 24(6): 485-497.
  31. Stewart S., Ekman I., Ekman T., Oden A. & Rosengren A. (2010). Population impact of heart failure and the most common forms of cancer: a study of 1 162 309 hospital cases in Sweden (1988 to 2004). Circ Cardiovasc Qual Outcomes, 3(6): 573-580. DOI: 10.1161/CIRCOUTCOMES.110.95757
  32. Valle R., Baccichetto R., Barro S., Calderan A., Carbonieri E., Chinellato M., et al. (2006). Heart failure in Eastern Veneto: prevalence, hospitalization rate, adherence to guidelines and social costs. Monaldi Archives for Chest Disease, 66(1): 63-74.
  33. Vellone E., Chung M.L., Cocchieri A., Rocco G., Alvaro R. & Riegel B. (2014). Effects of self-care on quality of life in adults with heart failure and their spousal caregivers: testing dyadic dynamics using the actor-partner interdependence model. Journal of Family Nursing, 20(1): 120-141. DOI: 10.1177/107484071351020
  34. Vellone E., D’Agostino F., Buck H.G., Fida R., Spatola C.F., Petruzzo A., Riegel B., et al. (2015). The key role of caregiver confidence in the caregiver’s contribution to self-care in adults with heart failure. European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 14(5): 372–81. DOI: 10.1177/147451511454764
  35. Vellone E., Fida R., D’Agostino F., Mottola A., Juarez-Vela R., Alvaro R. & Riegel B. (2015). Self-care confidence may be the key: A cross-sectional study on the association between cognition and self-care behaviors in adults with heart failure. International Journal of Nursing Studies, 52(11): 1705-1713.
  36. Vellone E., Riegel B., Cocchieri A., Barbaranelli C., D’Agostino F., Antonetti G., Alvaro R., et al. (2013). Psychometric testing of the self-care of heart failure index version 6.2. Research in Nursing and Health, 36(5): 500–511.
  37. Vellone E., Riegel B., Cocchieri A., Barbaranelli C., D’Agostino F., Glaser D., Alvaro R. et al. (2013). Validity and Reliability of the Caregiver Contribution to Self-care of Heart Failure Index. Journal of Cardiovascular Nursing, 28(3): 245-255.
  38. Vellone E., Riegel B., D’Agostino F., Fida R., Rocco G., Cocchieri A. & Alvaro R. (2013). Structural Equation Model Testing the Situation-specific Theory of Heart Failure Self-Care. Journal of Advanced Nursing, 69(11): 2481-2492.

  • A longitudinal assessment of chronic care pathways in real-life: self-care and outcomes of chronic heart failure patients in Tuscany E. Guidotti, F. Pennucci, A. Valleggi, S. De Rosis, C. Passino, in BMC Health Services Research 1146/2022
    DOI: 10.1186/s12913-022-08522-0

Ercole Vellone, Marco Paturzo, Fabio D’Agostino, Antonella Mottola, Antonio Petruzzo, Rosaria Alvaro, Barbara Riegel, Self-care in heart failure patients: major results of a 7-year research program in Italy in "SALUTE E SOCIETÀ" 1/2017, pp 51-64, DOI: 10.3280/SES2017-001005