Agency or disempowerment: Children with learning disorders in France

Journal title SALUTE E SOCIETÀ
Author/s Virginie Vinel, Veronika Kushtanina
Publishing Year 2019 Issue 2019/3
Language English Pages 12 P. 107-118 File size 150 KB
DOI 10.3280/SES2019-003010
DOI is like a bar code for intellectual property: to have more infomation click here

Below, you can see the article first page

If you want to buy this article in PDF format, you can do it, following the instructions to buy download credits

Article preview

FrancoAngeli is member of Publishers International Linking Association, Inc (PILA), a not-for-profit association which run the CrossRef service enabling links to and from online scholarly content.

This paper questions the agency of children with learning disorders, living in France. Con-ducted by qualitative methodology with children, parents and professionals, the research opens up the debate on how adults speak for the children and create diagnosis and care trajectories for them. It also questions the silences of the children, the ways they interpret and make sense of their world (Corsaro, 2018). Finally, we look into how children are able of acting by fol-lowing Hirschman’s (1970) three options: exit, voice and loyalty. As in the sociology of mi-norities, analysing the agency of children comes down to highlighting not only the processes and systems to which they are subjected, but also the diversion tactics, secondary adjustments, avoidance strategies and resistance techniques that enable them to take hold of issues of their everyday life.

Keywords: Children; Learning disorders (LDs); Agency; Silences; Secondary adjustments; Care trajectories.

  1. Skuse D. (2009). Psychological and Psychiatric Aspects of Turner Syndrome. In: Gravholt C.H., editor, Turner – Know Your Body! An information book on Turner Syndrome. Gothenburg: Novordisk.
  2. Sutton E.J., McInerney-Leo A., Bondy C.A., Gollust S.E., King D., Biesecker B. (2005). Turner syndrome: four challenges across the lifespan. American Journal of Medical Genetics, 139A(2): 57-66.
  3. Świątkiewicz-Mośny M. (2010). Tożsamość napiętnowana. Socjologiczne stadium mechanizmów stygmatyzacji i autostygmatyzacji na przykładzie kobiet z zespołem Turnera. Kraków: Nomos.
  4. Teilman G., Holm K. (2009). Chronic disease in adolescents. In: Gravholt C.H., editor, Turner – Know Your Body! An information book on Turner Syndrome. Gothenburg: Novonordisk.
  5. Schier K. (2009). Piękne brzydactwo. Psychologiczna problematyka obrazu ciała i jego zaburzeń. Warsaw: Scholar.
  6. Roberts C. (2007). Messengers of Sex: Hormones, Biomedicine, and Feminism. New York: Cambridge University Press.
  7. Rajtar M. (2019). Bioetyka i technologie wzmacniania ludzkiego ciała w kontekście doświadczeń kobiet z Zespołem Turnera. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Perspektywa antropologiczna. Warsaw: Oficyna Naukowa.
  8. Radkowska-Walkowicz M. (2019). Nikt nie rodzi się kobietą? Zespół Turnera i zwierciadła kobiecości. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  9. Marcus G. (1995). Ethnography in/of the World System. The Emergence of Multi-Sited Ethnography. Annual Review of Anthropology, 24: 95-117.
  10. Maciejewska-Mroczek E. (2019). O (nie)pewności choroby. Narracje matek mających córki z Zespołem Turnera. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  11. Lagrou K., Froidecoeur C., Verlinde F., Craen M., De Schepper J., François I., Massa G., Belgian Study Group of Paediatric Endocrinology (2003). Psychosocial Functioning, Self-Perception and Body Image and Their Auxologic Correlates in Growth Hormone and Oestrogen-Treated Young Adult Women with Turner Syndrome. Hormone Research, 66(6): 277-284. DOI: 10.1159/00009554
  12. Kucharska A. (2019). Zespół Turnera – aspekty medyczne. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  13. Krawczak A. (2019). Zespół Turnera. Macierzyństwo w planach. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  14. Kleinman A. (1988). The illness narratives: Suffering, healing, and the human condition. New York: Basic Books.
  15. Kastrup K.W. (2009). Turner syndrome in childhood. In: Gravholt C.H., editor, Turner – Know Your Body! An information book on Turner Syndrome. Gothenburg: Nordisk.
  16. James A., Hockey J. (2007). Embodying Health Identities. Basingstoke: Palgrave Macmillan.
  17. Irni S. (2013). Sex, Power and Ontology: Exploring the Performativity of Hormones. NORA – Nordic Journal of Feminist and Gender Research, 21(1): 41-56. DOI: 10.1080/08038740.2012.75724
  18. Hong D., Kent J.S., Kesler S. (2009). Cognitive profile of Turner Syndrome. Developmental Disabilities Research Reviews, 15(4): 270-278.
  19. Greer G. (1991). The Change. Women, Aging, and the Menopause. London: Hamish Hamilton.
  20. Goodley D. (2011). Disability Studies. An Interdisciplinary Introduction. London: Sage.
  21. Good B.J. (1993). Medicine, rationality, and experience. An anthropological perspective. Cambridge: Cambridge University Press.
  22. Gawlik A. (2015). Management of Turner Syndrome. European Endocrinology 11(2):100-1. DOI: 10.17925/EE.2015.11.02.10
  23. Foucault M. (1973). The Birth of the Clinic. New York: Pantheon Books.
  24. Coole D., Frost S. (2010). New Materialisms. Durham, London: Duke University Press.
  25. Butler J. (1999). J. Gender Trouble: Feminism and the Subversion of Identity. New York: Routledge.
  26. Budrowska B. (2000). Macierzyństwo jako punkt zwrotny w życiu kobiety. Wrocław: Funna.
  27. Beauvoir S. de (1971). The Second Sex. New York: Alfred A. Knopf.
  28. Barad K. (2007). Meeting the Universe Halfway: Quantum Physics and the Entanglement of Matter and Meaning. Durham, London: Duke University Press Books.

  • Enfants acteurs, enfants agis Virginie Vinel, Francesca Zaltron, in Revue des sciences sociales /2020 pp.12
    DOI: 10.4000/revss.4752

Virginie Vinel, Veronika Kushtanina, Agency or disempowerment: Children with learning disorders in France in "SALUTE E SOCIETÀ" 3/2019, pp 107-118, DOI: 10.3280/SES2019-003010