Agency or disempowerment: Children with learning disorders in France

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Virginie Vinel, Veronika Kushtanina
Anno di pubblicazione 2019 Fascicolo 2019/3
Lingua Inglese Numero pagine 12 P. 107-118 Dimensione file 150 KB
DOI 10.3280/SES2019-003010
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più clicca qui

Qui sotto puoi vedere in anteprima la prima pagina di questo articolo.

Se questo articolo ti interessa, lo puoi acquistare (e scaricare in formato pdf) seguendo le facili indicazioni per acquistare il download credit. Acquista Download Credits per scaricare questo Articolo in formato PDF

Anteprima articolo

FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

This paper questions the agency of children with learning disorders, living in France. Con-ducted by qualitative methodology with children, parents and professionals, the research opens up the debate on how adults speak for the children and create diagnosis and care trajectories for them. It also questions the silences of the children, the ways they interpret and make sense of their world (Corsaro, 2018). Finally, we look into how children are able of acting by fol-lowing Hirschman’s (1970) three options: exit, voice and loyalty. As in the sociology of mi-norities, analysing the agency of children comes down to highlighting not only the processes and systems to which they are subjected, but also the diversion tactics, secondary adjustments, avoidance strategies and resistance techniques that enable them to take hold of issues of their everyday life.

Keywords:Children; Learning disorders (LDs); Agency; Silences; Secondary adjustments; Care trajectories.

  1. Barad K. (2007). Meeting the Universe Halfway: Quantum Physics and the Entanglement of Matter and Meaning. Durham, London: Duke University Press Books.
  2. Beauvoir S. de (1971). The Second Sex. New York: Alfred A. Knopf.
  3. Budrowska B. (2000). Macierzyństwo jako punkt zwrotny w życiu kobiety. Wrocław: Funna.
  4. Butler J. (1999). J. Gender Trouble: Feminism and the Subversion of Identity. New York: Routledge.
  5. Coole D., Frost S. (2010). New Materialisms. Durham, London: Duke University Press.
  6. Foucault M. (1973). The Birth of the Clinic. New York: Pantheon Books.
  7. Gawlik A. (2015). Management of Turner Syndrome. European Endocrinology 11(2):100-1. DOI: 10.17925/EE.2015.11.02.10
  8. Good B.J. (1993). Medicine, rationality, and experience. An anthropological perspective. Cambridge: Cambridge University Press.
  9. Goodley D. (2011). Disability Studies. An Interdisciplinary Introduction. London: Sage.
  10. Greer G. (1991). The Change. Women, Aging, and the Menopause. London: Hamish Hamilton.
  11. Hong D., Kent J.S., Kesler S. (2009). Cognitive profile of Turner Syndrome. Developmental Disabilities Research Reviews, 15(4): 270-278.
  12. Irni S. (2013). Sex, Power and Ontology: Exploring the Performativity of Hormones. NORA – Nordic Journal of Feminist and Gender Research, 21(1): 41-56. DOI: 10.1080/08038740.2012.75724
  13. James A., Hockey J. (2007). Embodying Health Identities. Basingstoke: Palgrave Macmillan.
  14. Kastrup K.W. (2009). Turner syndrome in childhood. In: Gravholt C.H., editor, Turner – Know Your Body! An information book on Turner Syndrome. Gothenburg: Nordisk.
  15. Kleinman A. (1988). The illness narratives: Suffering, healing, and the human condition. New York: Basic Books.
  16. Krawczak A. (2019). Zespół Turnera. Macierzyństwo w planach. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  17. Kucharska A. (2019). Zespół Turnera – aspekty medyczne. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  18. Lagrou K., Froidecoeur C., Verlinde F., Craen M., De Schepper J., François I., Massa G., Belgian Study Group of Paediatric Endocrinology (2003). Psychosocial Functioning, Self-Perception and Body Image and Their Auxologic Correlates in Growth Hormone and Oestrogen-Treated Young Adult Women with Turner Syndrome. Hormone Research, 66(6): 277-284. DOI: 10.1159/00009554
  19. Maciejewska-Mroczek E. (2019). O (nie)pewności choroby. Narracje matek mających córki z Zespołem Turnera. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  20. Marcus G. (1995). Ethnography in/of the World System. The Emergence of Multi-Sited Ethnography. Annual Review of Anthropology, 24: 95-117.
  21. Radkowska-Walkowicz M. (2019). Nikt nie rodzi się kobietą? Zespół Turnera i zwierciadła kobiecości. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Głosy i doświadczenia. Warsaw: Oficyna Naukowa.
  22. Rajtar M. (2019). Bioetyka i technologie wzmacniania ludzkiego ciała w kontekście doświadczeń kobiet z Zespołem Turnera. In: Maciejewska-Mroczek E., Radkowska-Walkowicz M., Reimann M., editors, Zespół Turnera. Perspektywa antropologiczna. Warsaw: Oficyna Naukowa.
  23. Roberts C. (2007). Messengers of Sex: Hormones, Biomedicine, and Feminism. New York: Cambridge University Press.
  24. Schier K. (2009). Piękne brzydactwo. Psychologiczna problematyka obrazu ciała i jego zaburzeń. Warsaw: Scholar.
  25. Skuse D. (2009). Psychological and Psychiatric Aspects of Turner Syndrome. In: Gravholt C.H., editor, Turner – Know Your Body! An information book on Turner Syndrome. Gothenburg: Novordisk.
  26. Sutton E.J., McInerney-Leo A., Bondy C.A., Gollust S.E., King D., Biesecker B. (2005). Turner syndrome: four challenges across the lifespan. American Journal of Medical Genetics, 139A(2): 57-66.
  27. Świątkiewicz-Mośny M. (2010). Tożsamość napiętnowana. Socjologiczne stadium mechanizmów stygmatyzacji i autostygmatyzacji na przykładzie kobiet z zespołem Turnera. Kraków: Nomos.
  28. Teilman G., Holm K. (2009). Chronic disease in adolescents. In: Gravholt C.H., editor, Turner – Know Your Body! An information book on Turner Syndrome. Gothenburg: Novonordisk.

  • Enfants acteurs, enfants agis Virginie Vinel, Francesca Zaltron, in Revue des sciences sociales /2020 pp.12
    DOI: 10.4000/revss.4752

Virginie Vinel, Veronika Kushtanina, Agency or disempowerment: Children with learning disorders in France in "SALUTE E SOCIETÀ" 3/2019, pp 107-118, DOI: 10.3280/SES2019-003010