L’intervento psicosociale con il paziente oncologico e la sua rete di supporto: l’opportunità di coinvolgere l’assistente sociale

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Ines Testoni, Chiara Bertocco, Francesca Alemanno, Lucia Ronconi, Andrea Maccarini, Annamaria Perino, Teodoro Sava, Luca Riccardi
Anno di pubblicazione 2020 Fascicolo 2020/1
Lingua Italiano Numero pagine 14 P. 143-156 Dimensione file 163 KB
DOI 10.3280/SES2020-001011
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Evidence of many studies shows how the occurrence of a disease has a negative impact on various aspects of the patient's life and his family. This study took into account the needs of family caregivers, and also tried to analyze the territorial resources made available by the welfare system in a health district placed in the North-Eastern region of Italy. The research involved 89 caregivers of patients took in charge by the oncology day hospital and the home palliative care service. The methods used were the following: socio-anagraphic questionnaire, Distress Thermometer and Carer Support Needs Assessment Tools, in order to measure the needs of the patients, their level of distress and to recognize the needs of the caregivers and the level of burden they were experimenting. The results highlight how the absence of the availability of social workers in wards or services other than home palliative care has negative effects on the family. A need for psychosocial support emerges, which can ease the burden on the family caregiver. The findings converge in stressing that the use of social workers in oncology departments should become systematic.;

Keywords:Social work; caregiver; burden/strain/distress; valutazione psico-sociale; cure palliative; oncologia.

  1. Aoun S.M., Deas K., Howting D. and Lee G. (2015). Exploring the Support Needs of Family Caregivers of Patients with Brain Cancer Using the CSNAT: A Comparative Study with Other Cancer Groups. PLoS ONE, 10(12).
  2. Ardigò A. (2003). Società e salute: lineamenti di sociologia sanitaria, Milano: FrancoAngeli.
  3. Beccaro M., Costantini M. and Merlo D.F. (2007). Inequity in the provision of and access to palliative care for cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). BMC Public Health, 7(1). DOI: 10.1186/1471-2458-7-6
  4. Belletti M., Mallia L., Lucidi F., Reichmann S., Mastroianni C., De Marinis M.G., and Casale G. (2010). Complementary therapy and support services for formal and informal caregivers in Italian palliative care hospices: an exploratory and descriptive study. Supportive Care in Cancer, 19(12): 1939-1947.
  5. Caprini C. (2013). Servizio Sociale e Salute. In: Nuovo dizionario di servizio sociale. (2nd ed. pp. 327-332). Roma: Carocci.
  6. Connor S.R. (2017). Hospice and Palliative Care: The Essential Guide. Oxfordshire, England: Taylor and Francis.
  7. Dotti M. (2015). Il servizio sociale ospedaliero. Roma: Carocci.
  8. Facco E., Casiglia E., Zanette G. & Testoni I. (2018). On the way of liberation from suffering and pain: Role of hypnosis in palliative care. Annals of Palliative Medicine, 7(1): 63-74.
  9. Fann J.R., Ell K. and Sharpe M. (2012). Integrating Psychosocial Care Into Cancer Services. Journal of Clinical Oncology, 30(11): 1178-1186.
  10. Freidson E. (2002). La dominanza medica. Le basi sociali della malattia e delle istituzioni sanitarie (a cura di G. Vicarelli). Milano: FrancoAngeli.
  11. Ge L., and Mordiffi S.Z. (2017). Factors associated with higher caregiver burden among family caregivers of elderly cancer patients: A systematic review. Cancer Nursing, 40(6): 471-478. DOI: 10.1097/NCC.000000000000044
  12. Gómez-Batiste X., Martínez-Muñoz M., Blay C., Espinosa J., Contel J. C. and Ledesma A. (2012). Identifying needs and improving palliative care of chronically ill patients. Current Opinion in Supportive and Palliative Care, 6(3): 371-378.
  13. Gómez-Batiste X. and Paz S. (2007). Public palliative care: review of key developments and implementation issues. Current Opinion in Supportive and Palliative Care, 1: 213-217.
  14. Graffigna G., Barello S. and Riva G. (2013). Technologies for patient engagement. Health Affairs, 32(6):1172-1172.
  15. Gwyther L.P., Altilio T., Blacker S., Christ G., Csikai E.L., Hooyman N., … and Howe J. (2005). Social work competencies in palliative and end-of-life care. Journal of Social Work in End-of-Life and Palliative Care, 1(1): 87–120.
  16. Hannon B., Librach S.L. and Zimmermann C. (2013). Palliative care program development. Current Opinion in Supportive and Palliative Care, 7(2): 192-194.
  17. Holland J.C. (2002). History of Psycho-Oncology: Overcoming Attitudinal and Conceptual Barriers. Psychosomatic Medicine, 64(2): 206-221. DOI: 10.1097/00006842-200203000-0000
  18. Hughes S., Firth P. and Oliviere D. (2015). Core competencies in palliative care social work in Europe: an EAPC White Paper – part 2. European Journal of Palliative Care, 22 (1): 38-44.
  19. Human Rights Watch (2009). “Please, do not make us suffer any more”. Access to pain treatment as a human right. New York: Human Rights Watch.
  20. Jacobsen P.B., Donovan K.A., Trask P.C., Fleishman S.B., Zabora J., Baker F. and Holland J.C. (2005). Screening for psychologic distress in ambulatory cancer patients. Cancer, 103(7): 1494-1502.
  21. Loscalzo M., and Belcher J. (1999). The COPE model: Its usefulness in solving pain-related problems. Journal of Psychosocial Oncology, 16(3/4): 93-117.
  22. McNamara B.A., Rosenwax L.K., Murray K. and Currow D.C. (2013). Early Admission to Community-Based Palliative Care Reduces Use of Emergency Departments in the Ninety Days before Death. Journal of Palliative Medicine, 16(7): 774-779.
  23. National Comprehensive Cancer Network (2003). Distress management clinical practice guidelines. Journal of the National Comprehensive Cancer Network, 1:344 –374.
  24. National Breast Cancer Centre and National Cancer Control Initiative (2003). Clinical practice guidelines for the psychosocial care of adults with cancer. Camperdown, NSW: National Breast Cancer Centre.
  25. Nelson-Becker H., Nakashima M., Canda E., Berkman B. and D’Ambruoso S. (2006). Oxford handbook of social work in health and aging. New York: Oxford University Press.
  26. Patel K. and Masi D. (2015). Palliative Care in the Era of Health Care Reform. Clinics in Geriatric Medicine, 31(2): 265-270.
  27. Perino A., Di Qual E. (2017). Il contributo del Servizio Sociale alla promozione della continuità assistenziale tra i servizi per i malati in cure palliative. Una indagine nella ULSS 4 “Alto Vicentino”. Salute e Società, 3: 104-118. DOI: 10.3280/SES2017-003009
  28. Peterson E.B., Chou W.S., Falisi A., Ferrer R. and Mollica M.A. (2018). The role of medical social workers in cancer clinical trial teams: A group case study of multidisciplinary perspectives. Social Work in Health Care, 57(8): 688-704. DOI: 10.1080/00981389.2018.147789
  29. Sheldon F.M. (2000). Dimensions of the role of the social worker in palliative care. Palliative Medicine, 14(6): 491-498. DOI: 10.1191/02692160070153641
  30. SICP (2013). Il core curriculum dell’assistente sociale nelle cure palliative. Consultato da: www.sicp.it/web/lib/Download
  31. SICP (2016). Raccomandazioni commissione assistenti sociali società italiana cure palliative. L’apporto dell’assistente sociale alla valutazione multidisciplinare in cure palliative. -- Consultato da: www.sicp.it/web/lib/Download.
  32. SPSS Inc. (2009). PASW Statistics for Windows, Version 18.0. Chicago: SPSS Inc.
  33. Testoni I. (2016). Psicologia del lutto e del morire: Dal lavoro clinico alla death education. Psicoterapia e Scienze Umane, 50(2): 229-252. DOI: 10.3280/PU2016-00200
  34. Testoni I., Milo V., Ronconi L., Feltrin A., Zamperini A., Rodelli M., Cillo U., & Germani G. (2017). Courage and representations of death in patients who are waiting for a liver transplantation. Cogent Psychology, 4(1). DOI: 10.1080/23311908.2017.129433
  35. Testoni I., Falletti S., Visintin E.P., Ronconi L. & Zamperini, A. (2016). Il volontariato nelle cure palliative: Religiosità, rappresentazioni esplicite della morte e implicite di Dio tra deumanizzazione e burnout. Psicologia della Salute, 2: 27-42. DOI: 10.3280/PDS2016-00200
  36. Testoni I., Sansonetto G., Ronconi L., Rodelli M., Baracco G. & Grassi L. (2017). Meaning of life, representation of death, and their association with psychological distress. Palliative and Supportive Care, 16(5): 511–519.
  37. Tousijn W. (2000). Il sistema delle occupazioni sanitarie. Bologna: Il Mulino.
  38. Turner J., Zapart S., Pedersen K., Rankin N., Luxford K. and Fletcher J. (2005). Clinical practice guidelines for the psychosocial care of adults with cancer. Psycho-Oncology, 14(3): 159-173.
  39. Vicarelli G. (2010). Medici in Italia. La professione medica dall’unità al duemila. Roma: Carocci.
  40. Weis J. (2015). Psychosocial Care for Cancer Patients. Breast Care, 10(2): 84-86. DOI: 10.1159/00038196
  41. World Health Organization (WHO) (1946). “Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity”. In International Health Conference, pp. 19–22. New York: World Health Organization.
  42. World Health Organization (WHO) (1994). Yearbook of the United Nations 1994, 1433-1437.
  43. World Health Organization (WHO) (2016). Planning and implementing palliative care services: a guide for program managers. Geneva: World Health Organization.
  44. Zimmerman S., Cohen L.W., Reed D., Gwyther L.P., Washington T., Cagle J.G., … Sloane P.D. (2013). Comparing families and staff in nursing homes and assisted living: Implications for social work practice. Journal of Gerontological Social Work, 56(6): 535–553. DOI: 10.1080/01634372.2013.81114

Ines Testoni, Chiara Bertocco, Francesca Alemanno, Lucia Ronconi, Andrea Maccarini, Annamaria Perino, Teodoro Sava, Luca Riccardi, L’intervento psicosociale con il paziente oncologico e la sua rete di supporto: l’opportunità di coinvolgere l’assistente sociale in "SALUTE E SOCIETÀ" 1/2020, pp 143-156, DOI: 10.3280/SES2020-001011