Multiple sclerosis online: an analysis of the narratives of multiple sclerosis (ms) experience between illness and health blog

Author/s Giorgia Margherita, Anna Gargiulo, Alessia Caffieri
Publishing Year 2020 Issue 2020/2
Language Italian Pages 20 P. 5-24 File size 308 KB
DOI 10.3280/PDS2020-002001
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In the field of e-health, the research has recently focused on blog as narrative autobiographical spaces that, along the illness-health continuum, represent important narrative devices of illness experience. In particular, multiple sclerosis (ms), as degenerative chronic disease, induces to a continuous resignification of own experience. There are still too little studies about the experience of ms narrated in blog. The aim of the study is to explore themes in blog written by people with ms, identifying which differences exist in the narration of illness experience based on the time of communica-tion of diagnosis. Seven blog written by women with ms were analysed diagnosed in young adulthood and in adulthood. From the analysis four cluster emerged and subsequently project-ed on the factorial map and read through three sense vectors: The process of integration of the ms experience in the own identity; The illness online narration as a strategy of agency; Reorganization of the relationship between self and other. From our research the blog is seen as an organizer of meaning and resource in terms of improving well-being and health promoter in the experience of living together with the ms.

Keywords: Illness blog; multiple sclerosis; narration; e-health; qualitative research.

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Giorgia Margherita, Anna Gargiulo, Alessia Caffieri, Sclerosi multipla online: un’analisi delle narrazioni dell’esperienza di sclerosi multipla (sm) tra illness e health blog in "PSICOLOGIA DELLA SALUTE" 2/2020, pp 5-24, DOI: 10.3280/PDS2020-002001