Maternità e disabilità. Un’analisi sociologica sulle esperienze riproduttive delle donne con disabilità in Italia

Journal title SALUTE E SOCIETÀ
Author/s Ester Micalizzi
Publishing Year 2024 Issue 2024/2
Language Italian Pages 16 P. 133-148 File size 240 KB
DOI 10.3280/SES2024-002009
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This article focuses on the reproductive experiences of women with physical disabilities. Through the analysis of some of the material collected for research on the relationship between psycho-emotional disablism and the embodied experience of motherhood, the authors intend to reflect on the ways in which women with disabilities negotiate their reproductive desires with social and medical expectations. Some stories of mothers with visible and invisible physical disabilities (multiple sclerosis, infantile cerebral palsy, spinal muscular atrophy) collected through semi-structured interviews are explored. The results highlight the ways in which med-ical discourse acts on their reproductive decision as a barrier to being that can guide their re-productive choices, actions and desires.

Keywords: intensive mothering; embodiment; risk; psycho-emotional disablism; ableism; medical expert.

  1. Agovino M., Ferrara M., (2022). Disabilità: diseguaglianza sociale ed economica. Un’analisi empirica e teorica. Economia pubblica, 1: 11-42. DOI: 10.3280/EP2022-00100
  2. Asch A., Fine M. (1988). Introduction: Beyond pedestals. In: Asch A., Fine M., a cura di, Women with Disabilities: Essays in Psychology, Culture and Politics. Philadelphia: Temple University Press.
  3. Be A. (2016). Disablism in the lives of people living with a chronic illness in England and Portugal. Disability & Society, 31(4): 465 480. DOI: 10.1080/09687599.2016.118104
  4. Bellacicco R., Parisi T. (2020). L’inserimento lavorativo dei laureati con disabilità. Uno studio esplorativo sull’Ateneo torinese. Scuola democratica, Learning for Democracy. (1): 99-119. DOI: 10.12828/9679
  5. Benasso S., Stagi L. (2018). Ma una madre lo sa? La responsabilità della sana alimentazione nella società neoliberale. Genova: GUP (Genova University Press).
  6. Bichi R. (2000). La società raccontata. Metodi biografici e vite complesse. Milano: Franco Angeli.
  7. Blair A., Cao J., Wilson A., Homer C. (2022). Access to, and experiences of, maternity care for women with physical disabilities: A scoping review. Midwifery, (107) 103273.
  8. Bury M. (1982). Chronic illness as biographical disruption. Sociology of Health &Illness, 4(2): 167-182.
  9. Cardano M. (2020a). Argomenti per la ricerca qualitativa. Disegno, analisi, scrittura. Bologna: Il Mulino.
  10. Cardano M., Cioffi M., Scavarda A. (2020b). Sofferenza psichica, follia e disabilità. In: Cardano M., Giarelli G., Vicarelli G., a cura di, Sociologia della salute e della medicina. Bologna: il Mulino.
  11. Crenshaw K. (2005). Cartographies des marges: intersectionnalité, politique de l’identité et violences contre les femmes de couleur. Cahiers du Genre, 39(2): 51-82.
  12. Di Santo R. (2013). Sociologia della disabilità. Teorie, modelli, attori e istituzioni. Milano: Franco Angeli.
  13. Doucet A. (2000). There’s a Huge Gulf between Me as a Male Carer and Women: Gender, Domestic Responsibility and the Community as an Institutional Arena. Community, Work & Family. (3)2: 163-184. DOI: 10.1080/71365890
  14. Favretto A.R., Fucci S., Zaltron F. (2018). Con gli occhi dei bambini. Come l’infanzia affronta la malattia. Bologna: il Mulino.
  15. Frederick A. (2015). Between stigma and mother-blame: blind mothers’experiences in USA hospital postnatal care. Sociology of health &Illness. (37)8: 1127-1141. DOI: 10.1111/1467-9566.1228
  16. Frederick A. (2017). Risky Mothers and the Normalcy Project: Women with Disabilities Negotiate Scientific Motherhood. Gender & Society, (31)1: 74-95. DOI: 10.1177/089124321668391
  17. Goffman E. (1963). Stigma. London: Penguin.
  18. Hays S. (1996). The Cultural Contradictions of Motherhood. New Haven, CT: Yale University.
  19. ISTAT (2019). Conoscere il mondo della disabilità. Testo disponibile al sito: https://www.istat.it/it/archivio/255699 (20/08/2022).
  20. Lee E., Macvarish J., Bristow J. (2010). Risk, health and parenting culture. Health, risk & society, 12(4): 293-300. DOI: 10.1080/1369857100378973
  21. Liddiard K. (2013). The Work of Disabled Identities in Intimate Relationships. Disability and Society, (29)1: 115-128. DOI: 10.1080/09687599.2013.77648
  22. Loma I., Heyman R. (2011). Multiple sclerosis: pathogenesis and treatment. Curr Neuropharmacol. 9(3): 409-416. DOI: 10.2174/15701591179655791
  23. Malacrida C. (2009). Performing Motherhood in a Disablist World: Dilemmas of Motherhood Femininity and Disability. International Journal of Qualitative Studies in Education, (22)1: 99-117. DOI: 10.1080/0951839080258192
  24. Mauldin L., Brown R.L. (2021). Missing Pieces: Engaging Sociology of Disability in Medical Sociology. Journal of Health and Social Behavior, 62(4): 477–492. DOI: 10.1177/0022146521101935
  25. Meneghini R., a cura di (2015). Norma e normalità nei Disability Studies. Riflessioni e analisi critica per ripensare la disabilità. Trento: Erickson.
  26. Miller T. (2007). Is This What Motherhood is All About: Weaving Experiences and Discourse through Transition to First-Time Motherhood. Gender & Society. 21(3): 337-358. DOI: 10.1177/089124320730056
  27. Morris J. (1991). Pride Against Prejudice. Philadelphia: New Society Publishers.
  28. Oliver M. (1995). Understanding Disability. From Theory to Practice. London: Palgrave Macmillan.
  29. Organizzazione Mondiale Sanità (2011). World report on disability. Testo disponibile al sito: https://apps.who.int/iris/handle/10665/44575 (20/07/2022).
  30. Organizzazione Mondiale Sanità (2017). Guideline: protecting, promoting and supporting breastfeeding in facilities providing maternity and newborn services. Testo disponibile al sito: http://apps.who.int/iris/bitstream/10665/259386/1/9789241550086-eng.pdf?ua=1 (13/04/2022).
  31. Reeve D. (2002). Negotiating psycho-emotional dimensions of disability and their influence on identity construction. Disability and Society. (17)5: 493-508. DOI: 10.1080/0968759022014848
  32. Reeve D. (2012). Psycho-emotional disablism: the missing link?. In: Watson N., Roulstone A., Thomas, C., a cura di, Routledge handbook of disability studies. London: Routledge.
  33. Sassatelli R., Ghigi R. (2018). Corpo, genere e società. Bologna: il Mulino.
  34. Scavarda A. (2020). Pinguini nel deserto. Strategie di resistenza allo stigma da Autismo e Trisomia 21. Bologna: il Mulino.
  35. Tarasoff L.A. (2017). We don’t know. We’ve never had anybody like you before: Barriers to perinatal care for women with physical disabilities. Disability and Health Journal. 10 (3): 426-433.
  36. Thomas C. (1997). The Baby and the Bath Water: Disabled Women and Mothering in Social Context. Sociology of Health & Illness, (19)5: 622-643.
  37. Thomas C. (1999). Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
  38. Vick A. (2013). The Embodied Experience of Episodic Disability Among Women with Multiple Sclerosis. Disability & Society 28(2): 176-189. DOI: 10.1080/09687599.2012.69927
  39. Weiner H.L. (2008). A shift from adaptive to innate immunity: a potential mechanism of disease progression in multiple sclerosis. J Neurol. 255(Suppl 1): 3-11.
  40. Wendell, S. (1996). The Rejected Body. Feminist Philosophical Reflections on Disability. New York, Routledge.

Ester Micalizzi, Maternità e disabilità. Un’analisi sociologica sulle esperienze riproduttive delle donne con disabilità in Italia in "SALUTE E SOCIETÀ" 2/2024, pp 133-148, DOI: 10.3280/SES2024-002009