Children living in families with cancer; the interplay between children’s agency and family biographical disruptions

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Manuel Finelli
Anno di pubblicazione 2019 Fascicolo 2019/3
Lingua Inglese Numero pagine 12 P. 72-83 Dimensione file 147 KB
DOI 10.3280/SES2019-003007
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più clicca qui

Qui sotto puoi vedere in anteprima la prima pagina di questo articolo.

Se questo articolo ti interessa, lo puoi acquistare (e scaricare in formato pdf) seguendo le facili indicazioni per acquistare il download credit. Acquista Download Credits per scaricare questo Articolo in formato PDF

Anteprima articolo

FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

This article discusses the findings of a research analysing the involvement of children and ado-lescents in caring for relatives suffering from cancer as it intersects with their agency. Inter-views with a group of professionals from medical and social service providers, NGO direc-tors, academic researchers and public health officials were used to conceptualise the effects occurring on children/adolescents when the family’s biography is disrupted by oncological illnesses. The paper makes three main points. First, the recognition of a generalised tendency in marginalising children within the family relationship system whenever a relative within the household suffers from cancer. Second, the discussion of the children’s involvement in the care practices as a resource for the family wellbeing, the effectiveness of the therapy and the children themselves. Third, the analysis of their involvement in health care as it intersects with children’s agency. In harmonising theories from sociology of health and childhood studies, the paper sustains the worthiness of re-thinking and re-defining the interplay between children’s agency and family’s biographical disruptions. The combination of alternative models from usually separated disciplines offers an epistemological contribution in researching on intergen-erational relationships within sociology of health and illness frameworks.

Keywords:Children’s agency; Adultism; Illness semantic; Biographical disruption; Oncology; Grounded theory.

  1. Ardigò A. (1997). Società e salute, lineamenti di sociologia sanitaria. Milano: FrancoAngeli.
  2. Belotti V. (2008). Verso pari opportunità tra generazioni. In: Belotti V., Ruggiero R., editors, Verso pari opportunità tra generazioni, in Vent’anni d’infanzia: retorica e diritti dei bambini dopo la convenzione dell’ottantanove. Milano: Guerrini e Associati.
  3. Bury M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2): 167-182.
  4. Bury M. (1991). The sociology of chronic illness: a review of research and prospect. Sociology of Health & Illness, 13(4): 451-468.
  5. Carricaburu D., Ménoret M. (2007). Sociologia della salute. Bologna: Il Mulino.
  6. Charmaz K. (2006). Measuring pursuits, marking self: meaning construction in chronic illness. International journal of qualitative studies on health and wellbeing, 1/2006: 27-37. DOI: 10.1080/1748262050053448
  7. Corbin J., Strauss A. (1998). Basics of qualitative research; Techniques and Procedures for Developing Grounded Theory, II Edition. London: Sage Publications.
  8. Creswell J. (2013). Qualitative inquiry & research design, choosing among five approaches. Thousand Oaks: Sage Publications.
  9. Ennew J. (1994). Street and Working Children: A Guide to Planning. London: Save the Children Development Manuals.
  10. Favretto A.R., Zaltron F. (2013). Mamma, non mi sento tanto bene: la salute e la malattia nei saperi e nelle pratiche infantili. Roma: Laboratorio Infanzia e Adolescenza, Donzelli Editore.
  11. Favretto A.R., Fucci S., Zaltron F. (2017). Con gli occhi dei bambini; come l’infanzia affronta la malattia. Bologna: Il Mulino.
  12. Finelli M., Maggi S., Marchesi V., Rocca C. (2014). Ask Them: Child Participation in the Development of Educational Services. Canadian Journal of Children’s Rights, I/2014: 222-237.
  13. Finelli M., Nicoli A. (2015). La tutela dei minorenni nei percorsi terapeutici in oncologia seguiti dai familiari di riferimento; project report. Internal document. Roma: Agenzia Nazionale per i Servizi Sanitari Regionali.
  14. Holloway S., Valentine G. (2000). Spatiality and the New Social Studies of Childhood. Sociology, 34(4): 763-783. DOI: 10.1177/S003803850000046
  15. Hutchby I., Ellis J. (1998). Situating children’s social competence. In: Hutchby I., Ellis J., editors, Children and social competence. Arena of action. London: Routledge.
  16. James A., Prout A. (1990). A new paradigm for the sociology of childhood? Provenance, promise and problems. In: James A., Prout A., editors, Constructing and reconstructing childhood: contemporary issues in the sociological study of childhood. London: Routledge.
  17. James A. (2009). Agency. In: Qvortrup J., Corsaro J.W., Honig M.S., The Palgrave Handbook of Childhood Studies. New York: Palgrave & Macmillan.
  18. Jenks C. (2005). Childhood, II Edition. London: Routledge.
  19. Kleinman A. (1988). The illness narratives. Suffering, healing and the human condition. New York: Basic Books.
  20. Lansdown G. (1994). Children’s rights: Are we really respecting them? Educational and Child Psychology, 11(4): 18-23.
  21. Lupton D. (2012). Infant embodiment and interembodiment. Childhood A Global Journal of Child Research, 03/2012: 37-50. DOI: 10.1177/090756821244724
  22. Lusardi R., Manghi S. (2013). I limiti del sapere tecnico: i saperi sociali nella scena della cura. In: Vicarelli G., editor, Cura e salute. Prospettive sociologiche. Roma: Carocci.
  23. Mathieson C.M., Stam H.J. (1995). Renegotiating identity: cancer narratives. Sociology of Health e Illness, 17(3): 283-306.
  24. Maturo A. (2004). I precedenti nella storia del pensiero sociologico. In: Cipolla C., editor, Manuale di sociologia della salute. I. Teoria. Milano: FrancoAngeli.
  25. Maturo A. (2013). L’effetto moltiplicatore della soddisfazione del paziente. In: Ardissone A., Maturo F., editors, Disuguaglianze sociali e vissuto dei malati oncologici. Milano: FrancoAngeli.
  26. Mayhall B. (1998). Towards a sociology of child health. Sociology of health and illness, 20(3): 269-288. DOI: 10.1111/1467-9566.0010
  27. Montreuil M., Carnevale F. (2016). A concept analysis of children’s agency within the health literature. Child Health Care, 20(4): 503-511. DOI: 10.1177/136749351562091
  28. Prout A. (2005). The future of childhood: towards the interdisciplinary study of children. London: Routledge.
  29. Punch K.F. (2000). Developing Effective Research Proposals Essential Resources for Social Research. Thousand Oaks: Sage Publications.
  30. Ronfani P. (1995). I diritti del minore. cultura giuridica e rappresentazioni sociali. Milano: Perini scientifica.
  31. Salamonsen A., Kiil M.A., Kristoffersen A.E., Stub T., Berntsen G.R. (2016). My cancer is not my deepest concern: life course disruption influencing patient pathways and health care needs among persons living with colorectal cancer. Patients preference and adherence, 2016(10): 591-600. DOI: 10.2147/PPA.S108422
  32. Seale C., Gobo G., Gubrium J.F., Silverman D. (2004). Qualitative Research Practice. Thousand Oaks: Sage Publications.
  33. Smith C. (1990). Vicino alla morte. Guida al lavoro sociale con i morenti e i familiari in lutto. Trento: Erikson.
  34. Todres L., Galvin K.T., Holloway I. (2009). The humanization of healthcare: a value framework for qualitative research. International Journal of Qualitative Studies on Health Wellbeing, 4(2): 68-77. DOI: 10.1080/1748262080264620
  35. United Nations (1989). Convention on the Rights of the Child. New York: United Nations.
  36. Zeiher H. (2001). Dependent, independent and interdependent relations: children as members of the family household in West Berlin. In: Alanen L., Mayall B., editors, Conceptualising Child–Adult Relations. London: Routledge

Manuel Finelli, Children living in families with cancer; the interplay between children’s agency and family biographical disruptions in "SALUTE E SOCIETÀ" 3/2019, pp 72-83, DOI: 10.3280/SES2019-003007