Home Care Design for Parkinson's Disease

Francesca Tosi, Mattia Pistolesi

Home Care Design for Parkinson's Disease

Designing the Home Environment for People with Parkinson's Disease

This volume collects the results of the research programme Home Care Design for Parkinson’s Disease, aimed at defining good design practices to enhance the autonomy and quality of life of people with Parkinson’s disease within the home environment. The project approach is based on the principles of Design for Inclusion and on the theoretical and methodological approach of Human-Centred Design which have made it possible to focus attention on the specific needs and expectations of people with Parkinson’s disease and their families and to define the different design solutions.

Pagine: 346

ISBN: 9788835143635

Edizione:1a edizione 2022

Codice editore: 10085.11

Informazioni sugli open access

This volume collects the results of the research programme Home Care Design for Parkinson's Disease, aimed at defining good design practices to enhance the autonomy and quality of life of people with Parkinson's disease within the home environment.
The programme, promoted and financed by the Fondazione Zoé, was realised by a multidisciplinary work group - which involved the University of Florence for the area of design, the University of Turin for the area of neurology, the Catholic University of Milan for the area of sociology, the Universidade Federal de Minas Gerais (Brazil) for the area of industrial production engineering - in collaboration with the Confederazione Parkinson Italia and the Accademia Limpe-Dismov. The book proposes an introductory overview of Parkinson's disease from a medical and sociological point of view, analysing the main and most frequent areas of discomfort and/or difficulty experienced by people with Parkinson's disease during activities of daily living and relationships.
The project approach is based on the principles of Design for Inclusion and on the theoretical and methodological approach of Human-Centred Design which, through the direct involvement of users, have made it possible to focus attention on the specific needs and expectations of people with Parkinson's disease and their families and to define the different design solutions.
Specific insights are devoted to the emotional effects of interaction with the environments and products of everyday life, and to the opportunities offered by the use of enabling technologies, which, from robotics to wearable devices to environmental monitoring technologies, can offer concrete solutions for enhancing independence.
The second part of the book is dedicated to the design guidelines that provide solutions and operational indications to ensure maximum usability, safety and pleasantness of use of the home's interior, its furnishings and equipment.

Francesca Tosi,
Full Professor of Industrial Design at the University of Florence, is Scientific Director of the Laboratory of Ergonomics & Design LED. Her research and teaching activities focus on product innovation, Ergonomics and Design/Human-Centred Design/UX, Inclusive Design. She has directed, and currently directs, national and international research programmes in the fields of product innovation, design for health and care, design for inclusion for urban and collective space, and for museum environments and pathways. Since 2018 she has been President of CUID (Conferenza Universitaria Italiana del Design).

Mattia Pistolesi,
PhD in Design and designer, is Adjunct Professor of Ergonomics and Design Laboratory - Applications in the Bachelor of Industrial Design, University of Florence. Since 2014, he has been carrying out research activities at the Laboratory of Ergonomics & Design LED, dealing with topics related to usability, Interaction Design, Human-Centred Design and User-Experience applied to product design. He is the author of articles published in national and international scientific journals and conference proceedings.

Elena Zambon, Presentation
Giangi Milesi, Preface
(Home, sweet home?; Parkinson, the unknown; To generate usefulness plus beauty)
Francesca Tosi, Mattia Pistolesi, Introduction
(Bibliography)
Carlo Alberto Artusi, Leonardo Lopiano, Parkinson's disease
(Epidemiological notes; The cardinal symptoms of PD; Diagnosis and stages of the disease; PD therapy; Conclusions; Bibliography)
Linda Lombi, Beyond the clinical aspects: the social implications of Parkinson's disease
(Introduction; The triad "disease-illness and sickness" (DIS) applied to Parkinson's disease; The imagery of sickness: the social representation of Parkinson's disease and the problem of stigma; Institutional sickness: obstacles to social recognition of the illness; Conclusions; Bibliography)
Francesca Tosi, Human-Centred Design - Inclusive Design: design for People with Parkinson's disease
(Human-Centred Design: design for people; Recognise needs, design for inclusion; Designing for people with Parkinson's disease; Bibliography)
Francesca Tosi, Mattia Pistolesi, People with Parkinson's disease in the home environment
(The relationship with space and objects; The home for people with Parkinson's disease; Domestic accidents; Bibliography and web sites)
Mattia Pistolesi, Francesca Filippi, Accessibility of domestic environments: the regulatory aspects
(Designing "without barriers": the Inclusive Design approach; The international regulatory scenario; Bibliography and web sites)
Ester Iacono, Design and disability: emotional impact
(Emotional Design: the role of emotions; The contribution of the Evidence Based Design approach (EBD); Empathic Design: supporting designers to build empathy, planning for and with people suffering from Parkinson's disease; Bibliography)
Claudia Becchimanzi, Design and disability: new enabling technologies
(Robotic and wearable technologies: a powerful tool to support caregivers and PwP; Assistive technologies and the Internet of Things: principles, taxonomies and research areas; Assistive robotics: application areas and representative cases; A brief outline of ethical issues for new digital technologies; The role of Design; Bibliography)
Adson Eduardo Resende, Micro to macro or macro to micro? The project as production of means of life
(Use as project reference; Micro and macro: interfaces as a locus of action for designers; Possible answers; Final considerations; Bibliography)
Mattia Pistolesi, The research project Home Care Design for Parkinson's Disease
(Methodological approach; Results; Bibliography)
Francesca Tosi, Mattia Pistolesi, Guidelines for the design of usable home environments for people with Parkinson's disease
Acknowledgements.

Contributi: Carlo Alberto Artusi, Claudia Becchimanzi, Francesca Filippi, Ester Iacono, Linda Lombi, Leonardo Lopiano, Giangi Milesi, Adson Eduardo Resende, Elena Zambon

Collana: Serie di architettura e design - Open Access

Argomenti: Architettura, design, territorio

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