I destinatari protagonisti: la partecipazione di pazienti psichiatrici nella co-produzione di un servizio per l’integrazione sociale

Journal title SALUTE E SOCIETÀ
Author/s Caterina Balenzano, Giuseppe Moro, Vito Maffei
Publishing Year 2022 Issue 2022/1
Language Italian Pages 16 P. 97-112 File size 231 KB
DOI 10.3280/SES2022-001007
DOI is like a bar code for intellectual property: to have more infomation click here

Below, you can see the article first page

If you want to buy this article in PDF format, you can do it, following the instructions to buy download credits

Article preview

FrancoAngeli is member of Publishers International Linking Association, Inc (PILA), a not-for-profit association which run the CrossRef service enabling links to and from online scholarly content.

The experience "Una Teca per tutti" was examined to explore the potential of psychiatric patients’ active participation. Data collected by a desk analysis and a mini-focus group discussion carried out with the protagonist users were analyzed to evaluate the impacts of the project both on their rehabilitation paths and on the community. The results show that users’ active participation worked as a generative mechanism of recovery and impacted not only on the protagonist users’ quality of life, but also on the social integration of the patients who attended Teca’s activities, creating a less stigmatizing community climate. While patients’ protagonism has allowed them to become co-planners and co-managers of the service, the active participation of the community in the Teca’s activities has stimulated a bottom-up innovation process, as all the citizens, and not only the patients, have become active drivers of social change.

Keywords: recovery-oriented rehabilitation paths; social integration; social change; psychiatric patients’; active participation; mental health stigma.

  1. Balenzano C., Moro G. (2021). Mental illness and social exclusion: An evaluation of a recovery-oriented rehabilitation programme. Relational Social Work, 5(1): 11-33. DOI: 10.14605/RSW512102
  2. Berg B. (2009). Qualitative Research Methods for the Social Sciences (7th ed.) Boston, MA: Allyn and Bacon.
  3. Brantschen E., Landolt K., Kawohl W., Rössler W., Bärtsch B., Nordt C. (2017). Two types of expectancies concerning competitive employment among people with mental illness in supported employment. Journal of Vocational Rehabilitation, 46(2): 195-202. DOI: 10.3233/JVR-16085
  4. Cabassa L.J., Nicasio A., Whitley R. (2013). Picturing recovery: A photovoice exploration of recovery dimensions among people with serious mental illness. Psychiatric Services, 64(9): 837-842.
  5. Carman K.L., Dardess P., Maurer M., Sofaer S., Adams K., Bechtel C., Sweeney J. (2013). Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health affairs, 32(2): 223-231.
  6. Clementi S. (2019). Working Together Responsibly: An evaluation research of FARE’s program on mental illness. Relational Social Work, 3(2): 60-71. DOI: 10.14605/RSW51210
  7. Linhorst D., Hamilton G., Young E., Eckert A. (2002). Opportunities and Barriers to Empowering People with Severe Mental Illness through Participation in Treatment Planning. Social Work, 47(4): 425-434.
  8. Littell J.H., Alexander L.B., Reynolds W.W. (2001). Client participation: Central and under investigated elements of intervention. Social Service Review, 75(1): 1-28. DOI: 10.1086/59188
  9. Littell J.H., Tajima E.A. (2000). A multilevel model of client participation in intensive family preservation services. Social Service Review, 74(3): 405-435.
  10. Lopes Ferreira P., Serapioni M., Dolores S. (2012). La partecipazione dei cittadini nei sistemi sanitari dei paesi dell’Europa del Sud: Italia, Portogallo e Spagna. Salute e Società, XI, 1, 249-279.
  11. Marcussen K., Ritter C. (2016). Revisiting the relationships among community mental health services, stigma, and well-being. In Perry B.L., editor, 50 Years after Deinstitutionalization: Mental Illness in Contemporary Communities. Advances in Medical Sociology, vol. 17: 177-206. Bingley: Emerald Group Publishing Limited.
  12. Matthias M.S., Salyers M.P., Rollins A.L., Frankel R.M. (2012). Decision making in recovery-oriented mental health care. Psychiatric rehabilitation journal, 35(4): 305-314. DOI: 10.2975/35.4.2012.305.31
  13. Mawhinney S., McDaid C. (1997). “Having your say”: self-advocacy and individuals experiencing mental ill health, including commentary by Meyer. Journal of NT Research, 2(5): 380– 390.
  14. Mayer C., McKenzie K. (2017). “… it shows that there's no limits”: the psychological impact of co‐production for experts by experience working in youth mental health. Health & social care in the community, 25(3): 1181-1189.
  15. Moran G.S., Baruch Y., Azaiza F., Lachman M. (2016). Why do mental health consumers who receive rehabilitation services, are not using them? A qualitative investigation of users’ perspectives in Israel. Community mental health journal, 52(7): 859-872.
  16. Moran G.S., Russinova Z., Gidugu V., Yim J.Y., Sprague C. (2012). Benefits and mechanisms of recovery among peer providers with psychiatric illnesses. Qualitative health research, 22(3): 304-319. DOI: 10.1177/104973231142057
  17. New Freedom Commission on Mental Health. (2003). Achieving the promise: Transforming mental health care in America: Final report. US Department of Health and Human Services. (DHHS Pub. no. SMA-03-3832).
  18. Nygren U., Markström U., Bernspång B., Svensson B., Hansson L., Sandlund M. (2013). Predictors of vocational outcomes using individual placement and support for people with mental illness. Work,45(1): 31-39. DOI: 10.3233/WOR-13159
  19. Nyumba T.O., Wilson K., Derrick C.J., Mukherjee N. (2018). The use of focus group discussion methodology: Insights from two decades of application in conservation. Methods in Ecology and evolution, 9(1): 20-32. DOI: 10.1111/2041-210X.1286
  20. Oexle N., Müller M., Kawohl W., Xu Z., Viering S., Wyss C., Rüsch N. (2018). Self-stigma as a barrier to recovery: a longitudinal study. European Archives of Psychiatry and Clinical Neuroscience, 268(2): 209-212.
  21. Omeni E., Barnes M., MacDonald D., Crawford M., Rose D. (2014). Service user involvement: impact and participation: a survey of service user and staff perspectives. BMC health services research, 14(1): 1-13.
  22. Porter S., Lexén A., Johanson S., Bejerholm U. (2018). Critical factors for the return-to-work process among people with affective disorders: Voices from two vocational approaches. Work, 60(2): 221-234. DOI: 10.3233/WOR-18273
  23. Raineri M.L. (2017). Relational Social Work and mutual/self-help groups. Relational Social Work, 1(1): 19-38. DOI: 10.14605/RSW11160
  24. Schauer C., Everett A., Del Vecchio P., Anderson L. (2007). Promoting the value and practice of shared decision-making in mental health care. Psychiatric Rehabilitation Journal, 31(1): 54-61. DOI: 10.2975/31.1.2007.54.6
  25. Shamir E. (2012). Families and patients with mental illness: on the recovery road. In: Rudnick A., editor, Recovery of people with mental illness. Philosophical and related perspectives (pp. 39–57). Oxford: Oxford University Press.
  26. Storm M., Edwards A. (2013). Models of user involvement in the mental health context: intentions and implementation challenges. Psychiatric Quarterly, 84(3): 313-327.
  27. Tobin M., Chen L., Leathley C. (2002). Consumer participation in mental health: who wants it and why? Australian Health Review, 25(3): 91–100. DOI: 10.1071/AH02009
  28. Van de Bovenkamp H.M., Trappenburg M.J., Grit K.J. (2010). Patient participation in collective healthcare decision making: the Dutch model. Health Expectations, 13(1): 73-85.
  29. Van Langen W.J., Beentjes T.A., Van Gaal B.G., Nijhuis-van der Sanden M.W., Goossens P.J. (2016). How the illness management and recovery program enhanced recovery of persons with schizophrenia and other psychotic disorders: A qualitative study. Archives of psychiatric nursing, 30(5): 552-557.
  30. Vita A., Barlati S. (2019). The implementation of evidence-based psychiatric rehabilitation: challenges and opportunities for mental health services. Frontiers in psychiatry, 10: 147.
  31. Anthony W.A. (1993). Recovery from mental illness: the guiding vision of the mental health service system in the 1990s. Psychosocial rehabilitation journal, 16(4): 521-38.
  32. Vita A., Corrivetti G., Mannu J., Semisa D., Viganò C. (2016). Psychosocial rehabilitation in Italy today. International Journal of Mental Health, 45(1): 15-23. DOI: 10.1080/00207411.2015.1119375
  33. Winsper C., Crawford-Docherty A., Weich S., Fenton S.J., Singh S.P. (2020). How do recovery-oriented interventions contribute to personal mental health recovery? A systematic review and logic model. Clinical psychology review, 76, 101815.
  34. Xu Z., Lay B., Oexle N., Drack T., Bleiker M., Lengler S., Müller C., Mayer Brooke M., Rössler W. Rüsch N. (2019). Involuntary psychiatric hospitalisation, stigma stress and recovery: a 2-year study. Epidemiology and psychiatric sciences, 28(4): 458-465. DOI: 10.1017/S204579601800002
  35. Acocella I. (2008). Il focus group. Teoria e pratica. Milano: FrancoAngeli.
  36. Alang S.M., McAlpine D.D. (2019). Pathways to mental health services and perceptions about the effectiveness of treatment. Society and Mental Health, 9(3): 388-407.
  37. Altieri L. (2002). Ascolto e partecipazione dei cittadini in sanità: dimensioni, modelli, prospettive, problemi. Salute e Società, 7-21.
  38. Cooke S., Daiches A., Hickey E. (2015). Narratives of experts by experience: the impact of delivering training in partnership on the subject of personality disorder. The Journal of Mental Health Training, Education and Practice, 10: 234-244. DOI: 10.1108/JMHTEP-03-2015-001
  39. Corrigan P.W., Druss B. G., Perlick D.A. (2014). The impact of mental illness stigma on seeking and participating in mental health care. Psychological Science in the Public Interest, 15(2): 37-70. DOI: 10.1177/152910061453139
  40. Daley S., Slade M., Dewey M., Banerjee S. (2020). A feasibility study of the effects of implementing a staff-level recovery-oriented training intervention in older people’s mental health services. Aging & Mental Health, 24(11): 1926–1934. DOI: 10.1080/13607863.2019.164229
  41. Davidson L. (2012). Considering recovery as a process: or life is not an outcome. In: Rudnick A., editor, International perspectives in philosophy and psychiatry. Recovery of people with mental illness: Philosophical and related perspectives (pp. 252–263). Oxford: Oxford University Press.
  42. Dunstan D.A., Falconer A.K., Price I.R. (2017). The relationship between hope, social inclusion, and mental wellbeing in supported employment. The Australian Journal of Rehabilitation Counselling, 23(1): 37-51.
  43. Ewalds Mulliez A.P., Pomey M.P., Bordeleau J., Desbiens F., Pelletier J.F. (2018). A voice for the patients: Evaluation of the implementation of a strategic organizational committee for patient engagement in mental health. PloS one, 13(10), e0205173.
  44. Garfield S.L. (1997). The therapist as a neglected variable in psychotherapy research, Clinical Psychology: Science and Practice, 4(1): 40-43.
  45. Granheim U.H., Lundman B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24:105–112.
  46. Lammers J., Happell B. (2003). Consumer participation in mental health services: looking from a consumer perspective. Journal of Psychiatric and Mental Health Nursing, 10(4): 385-392.
  47. Lincoln Y.S., Guba E.G. (1985). Naturalistic inquiry. Beverly Hills (Cal.): Sage Publications.

Caterina Balenzano, Giuseppe Moro, Vito Maffei, I destinatari protagonisti: la partecipazione di pazienti psichiatrici nella co-produzione di un servizio per l’integrazione sociale in "SALUTE E SOCIETÀ" 1/2022, pp 97-112, DOI: 10.3280/SES2022-001007