Engaging patients in health management: towards a preliminary theoretical conceptualization

Journal title PSICOLOGIA DELLA SALUTE
Author/s Serena Barello, Guendalina Graffigna, Mariarosaria Savarese
Publishing Year 2014 Issue 2014/3
Language English Pages 23 P. 11-33 File size 166 KB
DOI 10.3280/PDS2014-003002
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Coinvolgere i pazienti nel processo di cura ("patient engagement") è oggi considerato un elemento imprescindibile per lo sviluppo e la realizzazione di sistemi sanitari sostenibili e all’avanguardia dal momento che si dimostra essere una strategia fondamentale nel raggiungimento di outcomes clinici positivi e per la riduzione della spesa sanitaria. Tuttavia, nonostante il crescente dibattito relativo a questo tema, il concetto di "patient engagement" risulta ad oggi teoricamente ed empiricamente poco formalizzato, spesso usato come sinonimo di altri concetti come "patient participation" o "patient involvement". Al fine di contribuire ad una fondazione teorica del concetto di "patient engagement", il presente studio si pone un duplice obiettivo: 1. descrivere i trend attuali relativi alla letteratura scientifica peer reviewed sul tema del "patient engagement" in termini temporali, prospettive disciplinari coinvolte e termini utilizzati per descrivere l’individuo coinvolto nel processo di cura; <br/> 2. individuare, comparare e sintetizzare le principali definizioni di engagement che stanno orientando il dibattito in quest’area, evidenziando eventuali carenze teoriche e suggerendo potenziali linee di sviluppo per la ricerca in quest’ambito. È stata condotta una revisione sistematica della letteratura dal 2002 al 2013 su tre database(PubMed/Ovid MEDLINE; Ovid PsycInfo; SCOPUS), utilizzando la seguente stringadi ricerca: "patient engagement" OR "consumer engagement" OR "client engagement" OR "citizen engagemen". Sono state condotte analisi bibliometriche sull’intero corpus di dati e analisi qualitative del contenuto su uno specifico sub campione di contributi che riportavano una specifica definizione di engagement. Su 1296 paper identificati in una prima fase di ricerca, solo 753 sono risultati pertinenti in quanto specificatamente focalizzati sul tema del "patient engagement". Di questi, solo 16 contributi presentavano una definizione esplicita di engagement qualificato come un concetto autonomo. Tuttavia, le definizioni attualmente presenti in letteratura si mostrano frammentarie e fortemente radicate nella prospettiva disciplinare degli autori proponenti. Inoltre, anche all’interno dei contributi che presentano una definizione esplicita di engagement, il framework teorico alla base risulta spesso parziale, meramente tassonomico, non contemplando la natura dinamica di tale fenomeno. Sulla base di questi risultati, il presente studio suggerisce di considerare il "patient engagement" come un concetto in evoluzione che necessita di una fondazione "ecologica" radicata nella prospettiva esperienziale dei pazienti e finalizzata a fornire insights sulle leve individuali, relazionali e organizzative alla base di questo processo.

Keywords: Patient engagement, health management, systematic review

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Serena Barello, Guendalina Graffigna, Mariarosaria Savarese, Engaging patients in health management: towards a preliminary theoretical conceptualization in "PSICOLOGIA DELLA SALUTE" 3/2014, pp 11-33, DOI: 10.3280/PDS2014-003002